I almost hesitate to write this as I know it’s really going to rile up Kate (aka Sledpress) but since my Medical Check List post I thought things were going rather well. Until this morning. After the blood test and ECG results came in my GP requested appointments for me to see a cardiologist and a dermatologist (for my going bald issue) and meanwhile oncology finally got in touch and I have another CT scan on Monday. Today I had the cardiologist at 9 AM, so I was up and out and in a taxi (in the rain) hoping to find something out. Alas… nope. They gave me another ECG when I got to the hospital and then I waited to see the doctor, who ended up remembering me from an appointment several years ago (I didn’t remember her, maybe that was my first mistake).
Anyhoodle, she acted very wary… saying I shouldn’t sit too close to her desk, telling me to turn my head away from her when she listened on the stethoscope. I mean, I get it. She is surrounded by possible sick people all day long, but she truly had no “bedside manner”. And worst of all was that she simply didn’t listen to me.
My reasons for being there were the following: I am short of breath almost always these days, I get that “tight skin” feeling in my arms when I stand up too quickly (and sometimes also feel a bit dizzy), I also sometimes have tightness in my chest (never actually got to tell her that bit) and, yes, the tachycardia keeps happening. ASSUMPTION was that I was there once again about the tachycardia, but I wasn’t. This is something I’ve had since I was 25 and NO DOCTOR has ever been able to find out why. So I was there because it’s increasingly harder for me to breathe and I get a “tight” pain in my arms and fingers, there’s also a tightness across my lower ribs. Did she listen to me? Did she fuck.
She was also annoyed that I didn’t know my blood pressure number – I told her it was a bit high when I saw my GP last week. So then I was told to monitor my BP twice a day (how? she didn’t say) and then go back to see my GP, who would probably prescribe medication. And then she wrote me a prescription for some drug to SLOW DOWN MY PULSE so that maybe I wouldn’t get tachycardia any more. Except I wasn’t there because of the tachycardia. Oh yeah, was also told I should drink decaf. And OF COURSE… “you are obese so these are probably related to that and you should lose weight”. This was her specialist take?
Can I tell you? I had no fight left in me after she said that. I mean of course I know that being overweight can cause health problems, or exacerbate ones you may already have, but I also know that these health problems are not “solved” by simply telling the person to lose weight. A friend of mine had similar symptoms recently and – thankfully for her – was taken seriously, was properly tested and had emergency surgery to repair a blockage in an artery. Like me, she thought she was just getting tired out by walking, etc because she was getting old and was overweight. Well nuh-uh. She had a serious but treatable condition that, without treatment, may well have killed her.
Now what? Fuck knows. I have the CT on Monday. Perhaps if there’s anything particularly dodgy with my heart it might show up there? I’ll mention it to the CT technicians (they are usually very nice) so they can have an extra look. In my vasty experience it’s usually the nurses, technicians (and sometimes even the cleaning staff!) who end up being more empathetic than the actual doctors. Wish me luck!
Why was that supposed to rile me up? Except that yeah, I want to give that doctor a thump on the head, but mainly I’m just hoping they get to the bottom of this. If there’s anything there that needs treating, I’m rooting for the techs and nurses to catch it.
We have, I have to say, all been stressed out, and blaming stress is as glib as blaming weight, but back in October, after six months of lockdown and a brutal surgery, I found myself with a pounding (not racing) heartbeat intermittently, occasionally swimmy-headed, and not keeping my balance. I was still able to plow up a steep hill and my trust Fitbit wasn’t registering any wild cardiac data, so I just sat with it. And then by New Year’s or so, it was… gone. The only thing remaining was a sense that I could not quite expand my whole rib cage on the first half mile or so of a speedwalk, but again, athletic performance was absolutely normal, and then I was able to get back together with my bodyworker, who’s been exterminating ALL kinds of muscle tension at the…. bottom of the rib cage. Which is, you know, your respiratory diaphragm. And just like that I’m pulling in air normally.
So I hope it’s something that simple, and that you get good techs who WILL catch something if it’s there.
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It wasn’t SUPPOSED to rile you up 😉 , I just thought it might because of your extreme dislike of doctors who talk down to their patients. And this one just totally blew me off. I left so angry at me for not standing up for myself more, and also at her for being such a dick.
Just over my diaphragm are four operations worth of scar tissue, adhesions, I’m sure it’s a total mess down there and could well be causing issues with being able to breathe properlly. Even the techs who did the ECG today, when I lifted my top, said – “wow, you’ve really been through it, those are very impressive scars!”
The cardiologist didn’t even acknowledge them, told me to turn away from her. Honestly, she was so unpleasant, I felt like she was judging me, I felt ashamed taking off my top in front of her. That’s not how a doctor is supposed to make you feel. I sure didn’t feel like that with the techs.
Well, let’s see what the CT scan says. I’m all worn out for today though. Can’t stop crying.
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It does wear you out. Exactly the words I used to the GP I found back in the nineties who was and is very patient and caring, but even he didn’t seem to understand the *exhaustion* of dealing with the medical system.
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Frustrating and annoying, no wonder you are tearful. I hope you have more sympathetic ears for your next appointment. x
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It just leaves you feeling so helpless. Anyhow, got the CT done, now awaiting results and wondering if I can get the oncologist to recommend me to a cardiologist at the hospital. We shall see.
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Sorry to hear all this, hoping for better outcome (and demeanor from “care” professionals!) next week.
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A heartless cardiologist! How’s that for irony?
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😦
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