
I just want to know WHEN!!! Is that too much to ask?
So, part two of ‘Carry On Cancer’, as Sara likes to call it. Back in July I was told that my liver operation would be in September, because of there being not many surgeons around during summer holidays in August. In fact, I was told that the op would probably be in the first half of September and that I would be notified by telephone. And well, here it is the 2nd of September and I still have no idea when they are going to slice and dice my poor liver . . .
This morning I had two pre-op appointments – one for an EKG and another with the anaesthetist. Then I was supposed to see the oncologist who would decide whether I was going to have another chemo session before my operation. The EKG went okay but when I got to the anaesthetist’s the nurse said – “but where is your history? You have to see your oncologist first and then they send your history here”. Well fuck. Nobody had told me that. It was just by chance that I had an appointment with the oncologist later the same morning, so the nurse (Isabel, who was very nice, btw) told me to go over to oncology, explain the situation and insist on seeing an oncologist immediately.
And imagine my surprise when that worked! Within ten minutes I was chatting to the doctor (a new one I hadn’t seen before) and he told me that if the operation was going to be in September then I wouldn’t have another chemo session until afterwards. But if it was going to be any later then I should have a session this week. Then he gave me my history (huge flippin’ envelope that weighed about ten kilos) and I trundled back to the anaesthetist’s. Nurse Isabel was very surprised that I’d managed to get all that done within half an hour and said she’d get me in next … which she did.
The anaesthetist was a middle-aged no-nonsense sort of woman. And everything was going well until she asked me why I hadn’t done the blood test for my (probable) transfusion. I told her that nobody had told me what THAT piece of paper was for (I have so many of them) and so I had to go for another blood test after just having had one yesterday for the chemo. Bleh.
AND THEN – following the anaesthetist’s advice – I went over to the main building and found the north wing on the third floor, where apparently all the liver doctors hang out, and there was my surgeon! So I said – “Hey, Dr Marín, what about my surgery date?”. He started going on about how the waiting list after the summer holidays might mean a delay, blah, blah, blah … but I finally got him to promise that he would check into this and have someone call me tomorrow.
So although it was a pretty crazy morning I’ve taken care of all the pre-op stuff and should know soon about my operation date and whether I need to have another chemo session this week. And although I had to do a couple of extra things, getting in to see the oncologist so quickly shaved at least two hours off the waiting time. In fact, since we were so busy going here and there and not really waiting for long in any one place, Nog & I didn’t have time to take out the travel Scrabble game.
After it was all over I texted Sara & Steve and we arranged to meet for a cold beer at Campanario, which led to a nice tapa lunch at La Estrella, and then we all headed home for a siesta.
And so, I should have my operation date tomorrow. I’m really hoping that it will be sooner than later and that I won’t have to have a chemo session while S&S are here. Fingers crossed!
“I just want to know WHEN!!! Is that too much to ask?”
I wouldn’t have thought so, no.
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I found this exhausting to read, so I can’t imagine how it felt for you to be doing it. I hope you get good news tomorrow!
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I’m with WC! What a morning. I’m visualizing your liver surgery being the day after S&S leave. And I thought my morning of feeding the cat over and over and acting as his door person was busy! (Just kidding. . .)
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That is what makes me so angry about most public health systems. The lack of care. The lack of consideration for the patients.
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crossing toes too. betcha didn’t know i could do that 🙂
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Oh wow, that’s AWESOME! You’ve got them whipped! And a nurse on your side, too. It doesn’t get better than that.
Also, I am aware of what this says about the quality of care one can expect during a critical illness. Take it up with the healthcare system.
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Also: you know what? It doesn’t get any better when you’re dealing with private care; they just use nicer euphemisms and cushion things better.
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Yeah – you are more coimfortable while you are being given the run-around.
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“It doesn’t get any better when you’re dealing with private care”
I’ll say. It was the private hospital I first went to that misdiagnosed me for a week and then passed me off to the public hospital when they realised I was about to die if I didn’t get an emergency operation that they were incapable of performing. Seriously, they almost killed me!
But I just don’t understand why it’s up to ME to coordinate the chemo treatments with my liver surgery. Shouldn’t the oncologist and surgeon be sorting this out?
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I like the way they “assume” that you knew or should have known to do this or that…. As though preparing for a liver op was a routine thing that everyone should have down to a fine science by now…
My Mom constantly gets calls from “speialists” that some doctor or other at her public clinic has arranged without telling her, usually the call coming the day before. Then she gets there and they say “Why didn’t you bring this or that….”.
Once, she spent two months taking her blood-pressure thrice daily, took the results in to the doctor who ordered her a special BP monitor to do so…. only to have the doctor say “I don’t want to see those” and toss them aside. Se got a call from the same specialist’s office telling her that he wants to see her again and she doesn’t want to see him. He is rude and dismissive. I said “So don’t!
The appointment she has tomorrow at the Cardiovascular Centre with another cardiologist that she likes much better and I said the next time they call from the first one, tell them you don’t like the dcotor because he is rude so you won’t be seeing him.
She’s 84! If she drops dead tomorrow she’s fine with that. It isn’t as though she’s 50. To my mind, having her wandering all over town for appointments which aren’t likely to improve her lifestyle is more of a strain than just letting her be.
Given her d’ruthers, she’d rather they got rid of the pain in her hip than spend so much time on her heart which, for an 84 year-old, is running pretty smoothly.
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I like the way they “assume” that you knew or should have known to do this or that…
Yeah I know, like I do this all the time. Also, I do get a bit lost sometimes when they rattle off a bunch of instructions in Spanish – it would be confusing enough in English.
Anyhow, I’ve just talked to Ricardo (head of Nuclear Medicine) and The Team is now on the case! Ricardo said they would check out what was going on and get back to me either tomorrow or Friday. He also told me not to worry about missing a week of chemo, and he’s pretty sure the operation is going to be soon since I had the pre-op tests done with the anaesthetist yesterday.
Stay tuned . . .
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*does happy dance*
I am soooooooooooooooooo relieved.
Apparently Ricardo phoned my surgeon first thing this morning because around 8.30 I got a call from Dr M confirming that the operation will be sometime during the last two weeks of September. So, no more chemo and I get to have relaxed ‘holiday time’ with Sara and Steve.
Of course, two weeks from now I’ll be shitting bricks, but for now I feel so happy that I know what’s going on and that I can make plans.
I’m so lucky to have The Team backing me up when I need them. 🙂
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Excellent news – now ENJOY YOURSELF!
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Especially as you have practising “Carpe Diem”ing
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“now ENJOY YOURSELF!”
Yes SIR! In fact I celebrated yesterday by inviting Sara and Steve over for lunch, which was fun and turned out to be quite a feast. I think I could now use a couple of healthy ‘eat light’ days to balance things out a bit. And S & S have a new Irish pub to check out, as well as going to see flamenco at La Carbonería.
Aside from not actually being able to afford to go out much, I find that going out at night is too exhausting. Usually by 9pm I’m in my pj’s and curled up with a book or in front of the telly.
Anyhow, it really does feel like I’m suddenly ‘on holiday’. At least for a week, and maybe two. I’m certainly going to make the most of it. 🙂
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That’s good to hear, az 🙂
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Glad to hear, Az!
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Well, Bless The Team! So glad you have them in your corner. You go and PARTY, young lady!
I remember the run-around pretty well, myself — it always got me seeing red when the assumption was that the patient should just “know” what the procedure is.
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Aaaack! Isabel (one of The Team) just called to ask me if I had the operation date yet because when she spoke to the head of surgery last week he told her it was going to be soon. And here I’d become lulled into a false sense of ‘having more time’ (I was hoping at least until the 22nd). Well, at least it worked out well for my visit with Sara and Steve. But next Monday (if Isabel is right) feels WAY TOO SOON!
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