Category Archives: hospitals

more no news is good news

25 Wednesday Jul 2018

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After having my oncology appointment postponed a couple of times, I finally got in to see my doctor. And the news was kind of the same as the last time. The good news is that the inflamed area is a bit smaller than it was in March, so that seems hopeful. The “bad” news isn’t actually bad. But they still want to keep a watch on this, so another CT scan is scheduled for November, at which time they will probably also do another endoscopy. Meanwhile I am to get in touch if any of the scary symptoms return (abdominal pain, unexplained weight loss).

Anyhow, after leaving the hospital we stopped in at Las Teresas for a celebratory glass of cava with jamón. So until November… am really going to try to just get on with things, but it is difficult for me to just relax about all this. Still, very glad that it wasn’t actually bad news.

more suspense!

05 Thursday Jul 2018

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Aaaargh. So after wasting a morning of my life at the hospital two weeks ago (but getting a cool ride in a Jaguar!)  today’s oncology appointment was also postponed because the results weren’t signed in time. So now I have an appointment on July 12th… BUT… it turns out my oncologist is going to be away on holiday (!!) so I will end up seeing someone I don’t know and who doesn’t know me. I could put it off until August – and maybe I should? – but I would really like to know what’s going on. Meanwhile I have recklessly booked my summer trips thinking that if anything horrible had shown up on the last CT they would have called me in sooner. Anyhow, that’s me at the moment. Not too thrilled about things, and still quite nervous, but hoping for the best.

the jag

21 Thursday Jun 2018

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So this morning was THE BIG DAY. After several months of tests, including the original PET scan, then a colonoscopy, endoscopy, blood tests, a CT scan with another follow-up CT last week… I was finally going to get my results. To hopefully tell me what is going on with the mysterious “area of inflammation” they found during my last PET scan in February.

I won’t lie. I’ve been a bit of a mess about this since they started “investigating” this inflammation. I do my best to live in denial and just carry on with my life, but when it comes to stuff like booking a tapas tour a few months in advance, I am left wondering if I’ll actually be able to do it. Likewise with my summer plans. I’ve been putting everything on hold until I got the “go ahead”. Which was supposed to be today.

Except it wasn’t. I got to the hospital and after more than an hour in the hot and crowded waiting room, I was shown into the oncologist’s office… only to be told the CT scan results hadn’t been processed yet. WTF? My oncologist looked surprised and said – “oh, didn’t they call you yesterday?”. Well of course they hadn’t fucking called me yesterday, otherwise I wouldn’t have been there. Also, I wouldn’t have lost most of this week in a state of suspended emotion, not daring to feel or hope… JUST IN CASE. And so I sat there not believing this was happening. Then the doctor pulled a date out of the air – July 5th – to meet again, saying that FOR SURE the results will have been processed by then. Well, what choice do I have?

I walked out of the hospital feeling a whole whack of mixed emotions. In some ways I was relieved because “no news is good news”. Well, maybe. But I was also annoyed at having lost my entire morning, not just the 3 hours getting to and from the hospital, and waiting there, but really the whole day up until then. BUT… what saved the entire experience from total disaster was… my taxi! I always taxi to the hospital and then usually walk back, mostly because I am so stressed before going that a taxi is a comfortable and easy way of getting there.

Anyhow check it out. I got into the taxi, not paying much attention. Then I noticed the big JAGUAR logo on the dashboard screen. And so I stupidly said to the driver – THIS IS A JAGUAR??? Then I went all fan girl, saying how Jags were my favourite cars and that I couldn’t believe that I was in a Jaguar taxi. The driver informed me that not only was this was the only Jaguar taxi in Sevilla, it was the only one in Spain. WOW. I told him that I was going to the hospital for test results and that I took this as a positive sign, and also that it was so cool that I’d be arriving there in style. And bless him, he said he was sure this meant everything was going to be okay. Then he showed me a photo of his friend’s taxi – the only Maserati taxi in Spain. I’m telling you, this totally MADE MY DAY. Being driven to the hospital in a Jaguar XF.

Meanwhile, I now have two more weeks of hellish anxiety until the next oncology appointment. I wish I would have asked my driver for his card so I could always call him up when I have to go to the hospital…

my first endoscope

01 Thursday Mar 2018

Posted by in cancer, friends, health & happiness, hospitals, sevilla

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The endoscope examination is pretty much like the one at the other end, except without the horrendous massive “clean out” prep. For this one all I had to do was not eat or drink for 8 hours before the test. I actually had my last meal more than 12 hours before, but going 8 hours without any water (!!!) was really hard. I’m a 2-litre a day water drinking fiend.

Just like with the colonoscopy I was sedated before the procedure but this time I wasn’t so lucky with my nurse, who could NOT seem to find a vein anywhere. And hand pokes are way more hurty than arm pokes, but anyhow. I was eventually chemically relaxed enough and they did their stuff. It was uncomfortable more than painful, and I got a bit gaggy towards the end, but nothing too awful. And then I was wheeled into the recovery area.

And the best thing of all was that they told me they hadn’t found anything, that I was “all clear”! I have to say that I love this about the Digestivo department, giving patients their results straight away so they don’t have to wonder and worry until they see their doctors again (my next onc appt is March 19th). Though I suspect they only hand out the good news results. But hey, I am happy.

From what I understand, this now means that they have ruled out two of the main possibilities for recurrence – for now. Next up will be another CAT scan three months from now to compare those results to the last one. The main issue being ALL THAT INFLAMMATION that nobody can explain. And so… good, right? At least until I hear otherwise. And so, back to living in denial.  😉

still in limbo…

26 Monday Feb 2018

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I’ll write something more about my fab weekend away later. As usual, it was great to come home and be welcomed by los gatos (this big lug was especially happy to have his comfy warm human lap back). Though I didn’t sleep so well because today I had my oncology appointment to get the results for the colonoscopy and CAT scan. Bottom line is that I am still in limbo for now.

The colonoscopy results were good, which I already knew because at the time I asked them if they had taken samples to be tested, and they said no because they hadn’t found anything. Phew!

But I had to wait until today for the CAT scan results. In a word, they were inconclusive. There is still that pesky area of inflammation sitting over my stomach that is obscuring any clear scan results, either the PET or CAT. The reason I am getting all these extra tests now is because the last PET scan results showed that the inflammation had grown substantially since the previous one, and I was also in a lot of pain. Though shortly after the last PET the pain suddenly disappeared.

And so, because they don’t actually know what is going on in that murky area of inflammation, I now have to have an endoscopy so they can look inside my stomach. That will happen on Thursday. AND THEN… I have to go through the hell of waiting for results until my next oncology appointment on March 19th.

I like my new oncologist. She is very clear and sympathetic, and answers all my questions. Today she said that because of this “murky area” they simply cannot say with certainty that I am in the clear. And so even if the endoscopy comes back clean, they will still want to do a follow-up CAT scan in three months. She said the only way to be 100% sure that I have no cancer is to operate, which she thinks is too aggressive an approach at this time, especially as the pain has disappeared.

After having undergone four major abdominal operations, the main suspect at the moment is post-op adhesions, when the buildup of fibrous bands of scar tissue wreaks havoc on the surrounding organs. This very same buildup often shows up as inflammation on scans, and can obscure scan results.

So here I am once again in limbo. Of course I am relieved that I wasn’t told today that they’d found cancer and then passed on a death sentence… but I am not out of the woods yet. Because although my doctor told me today it was a positive sign the pain had gone, they wouldn’t be doing these extra tests fer nuthin. So today felt like a “stay of execution”, and now I am waiting (with fingers crossed) for a full pardon. xx