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It started with solo trips to the hospital for my monthly chemo port cleaning – I realised that if I went in the evening it was less busy and I could be in & out in about ten minutes. The first time I taxied there and back and the whole thing took less than an hour, which I thought was pretty good. It also felt good not to have to ask someone to come with me – thought it best to save that favour for scarier appointments like seeing the oncologist and going for PET scans. And so I started planning the port cleaning trips for evenings that Nog had a class nearby – we’d meet up after we’d both finished, go for a tapa and then walk home together (same price as taxi fare, but much more pleasant!). From there I started getting braver and braver…
First of all, you have to understand that I’ve always had problems with hospitals. Even when I was teaching there it would sometimes be very difficult for me – I’d get panic attacks on my way there, sometimes would actually have to cancel or postpone classes. So imagine how much worse it became after getting cancer and having to be there for the worst of reasons.
This is why I felt so proud of myself for finding a way of handling the monthly port-cleaning thing better. But the real test came a couple of weeks ago when I suddenly found myself without a hospital buddy for my latest oncology appointment. I managed that one by spending most of the waiting time downstairs with The Team in Nuclear Medicine (one of the places I used to teach), which made things much easier. And of course having a nice lunch with Pilar & Isabel afterwards helped. So I didn’t actually do this one one my own, though I did end up having to talk to the oncologist by myself. Trust me, that was brave!
Then on Tuesday I had to go back to the hospital for an appointment with Internal Medicine, which was about the four-hour tachycardia episode, and once again I had no hospital buddy to go with me. But somehow I didn’t feel nervous about this. I had an image of me all safe in the taxi, going to this new section of the hospital, seeing a new doctor that had nothing to do with cancer … and that felt like it would be okay. And it was!
My appointment was quite long – about 45 minutes – because the doctor had to “get my story straight”. When she first checked my history on the computer she was a bit taken aback, not having known anything about the whole cancer ordeal. In the end she said that, compared with everything I’ve been through, the tachycardia was probably the least of my worries, but she still wants me to have more tests and get to find out why I’ve had this problem for almost half my life and what can be done to alleviate it. So I’ll be having more specific blood tests done, an ultrasound, some other EKG stuff and – this is going to be awful – I’m going to have to wear a Holter monitor for a couple of days. Arrgh. I told her I’d done all this about 5-6 years ago and they never found out what the source of the problem was, to which she replied that I hadn’t had it done THERE, and that after all the operations and chemo it was a good idea to make sure no damage was done to my heart. I was also informed that there are several types of tachycardia that can be treated in various ways, so it is important to find out which type I have.
Of course my main issue about all of this is that I was hoping to have a complete hospital break until my next oncology appointment at the end of November. I even found out that as of next month I’ll be able to get the port cleaning done at my health centre (a ten minute walk from my house!). But it looks like I’ll be back-and-forthing to the hospital like crazy for all this heart stuff. But it’s more of a bother than a worry. I don’t know how it happened, but I’m not afraid anymore. On Tuesday I even had my wits about me enough to remember to bring my chemo card so I could also get my port cleaned while I was there (eliminating next week’s hospital trip) and was feeling quite chuffed. And so I asked the doctor if we could at least postpone all this testing until September. No problem. And I reckon it won’t be a problem for me either … who knows, I might even start cycling instead of taking taxis.
That photo above is an old olive tree that was transplanted to a small green area next to the hospital, in appreciation of the fine work done by everyone there. I have to say that, cranky oncs aside, I have been very pleased with the treatment I have received at Virgen de Rocio … and especially for that time they saved my life.
The plaque in front of the olive tree is part of a poem by Antonio Casares…
Yo quisiera estar siempre como tú, viejo olivo,
enhiesto bajo el cielo azul de Andalucía,
como un dios que se siente eternamente vivo,
heraldo de una tierra que anuncia la alegría.
– Antonio Casares












Well done Az! I think you’re so brave to have faced all those hospital appointments – even with a buddy, let alone without one.
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I’m just so pleased that so much of The Fear is gone. Well, until the next PET scan that is…
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Like the olive tree under the blue Andalucian sky – you’re a survivor.
:hugs:
ps – can you translate the rest of the wording on that plaque, please?
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Only kind of, because it’s poetry. Let’s see…
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Well done az! You’ve come a long way. Love the olive tree, too – must be an inspiration and consolation to people as they come and go.
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It really has been a long way. And I do love that olive tree.
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How brilliant that you’ve become so fearless!
I’m loving the tone of most of your posts these days, Az – so upbeat. They really are a joy to read.
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Thanks Deb, I’ve been kind of liking that aspect too – nice to hear it comes across as well.
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the olive tree is beautiful, Az.
What you describe is similar to what happened to me with scans. There were so many of them one year, so many trips to NYC, so many infusions (one every other week.) About half-way through, I realized on Friday that I was having a scan in two days – so much had been going on that I’d just not had time to worry about it. And then I realized that I didn’t *have* to worry about it – it was going to happy, worry or not, so why waste that energy.
Here’s to bravery, and small steps forward!
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That moment the penny drops … it’s not something you can tell anyone, is it? It just seems to happen in its own natural time. I used to wonder what you thought of me making such a big fuss about having to go for a port cleaning when you’d been doing all those hospital trips on your own for ages. But it looks like I’m catching up! 🙂
I think my “big break” came when I had ot see the onc on my own, and spent most of the time waiting with my friends in Nuclear Medicine. Finally PIlar said they were going to leave for lunch but would wait for me at the restaurant, no rush. So then I ran back upstairs and it turned out they’d been calling me. But my main priority was getting over to the restaurant so as not to hold up lunch with the girls, so I ended up feeling quite no-nonsense and let’s-move-things-along when I got in to see Dr Ana. I was taking charge! And I think I finally realised that even if me and oncologists never see eye-to-eye I do still need them for certain things. And so I won’t rock that boat – but when I have real questions I’ll speak to The Team.
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That hospital phobia is a difficult thing to deal with, and it doesn’t seem to have to have a root in anything “real.” Jim has that problem. When his dad had open heart surgery it was all he could do to make himself go visit. We had a very short time in the ICU as it was because the guy was turning a pale green color and the nurse was not excited about the prospect of dealing with someone fainting in the middle of all her equipment, and hustled us out of there.
Then, in your case, add your very real traumatic experiences to the original phobia, and you have a huge horror/fear to deal with. It is truly wonderful that you have been able to overcome “The Fear”. It was not an easy thing at all, and I’m glad you have been able to do it.
The olive tree and the poem are beautiful.
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I can go into any hospital in the world as long as it’s for someone else. After the way I was treated the last time I was in one, not to mention the fact that I would have been better off staying home, the only way I’m going back on my own account is involuntarily. So I am just mutely impressed.
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Oh, same here. I could accompany anyone to the hospital and probably be very supportive. And I think I am just finding out now that I can do the same thing for myself. All those baby steps have suddenly turned into one big giant step. But I wouldn’t have got there without my friends.
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Life is growth. The past couple of years have been filled with trauma but through it you have grown. While hospital visits are not one of my phobias, I have others. I wish I could be as brave as you are becoming. You are right to be proud of what you have achieved.
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The thing is, now that I’m doing it, it doesn’t feel brave. I’m just surprised at the changes, and also happy that they happened.
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As I’ve always said, I don’t have any problems, my kids don’t have any problems and my family doesn’t have any problems. Not compared to a very large group of other people, anyway.
You’re taking charge of your life and your feelings, that is a Very Good Thing. I wish you nothing more than health and happiness and lots of good friends (although I think you have that last one in the bag). I still miss you guys every day, sometimes I want to read this blog for that reason and sometimes I don’t want to read it for the same reason. Either way, I’m thinking about you. Take care and have a little more Cava, OK? 😛
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