
Back from seeing the oncologist and basically there’s no news. Things are as I suspected, with both the colonoscopy and endoscopy results clean. But there remains that pesky – and mysterious – inflammation that nobody can explain, short of opening me up, which my doctor seems to think is a bit drastic at this point. She wants to continue with clinical studies for the moment and monitor my “well being”. And so the next CT scan will be in May and I’m to check in with her again mid-April just to report on how I’m feeling.
All of this is both comforting and yet still somewhat alarming, because if they were sure I was okay then they wouldn’t be doing another CT so soon. So there must be something about the inflammation they find worrying. I forgot to ask about possible peritoneum issues, which I’d had before, and which usually don’t show up on scans. But I was there on my own today and, as usual, I got nervous and forgot what I’d wanted to say. I had also wanted to ask about the “opening me up” options, but then got caught up in the good news side of things. Basically I should never go alone to these appointments. I’d be more worried about this now if I wasn’t seeing the oncologist again in April. Next time I’ll take notes.
Anyhow, afterwards I made my way home, stopping at Casa Morales for a quick “brunch” (tortilla and a beer), because I had been too nervous to eat breakfast before going to the hospital. And it was nice to just chat with the guys there and feel normal, even though “life in limbo” continues.
I’m sorry this is dragging out, it must be frustrating & a bit scary. But it’s good they’re keeping an eye.
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Yeah, but it’s the fact that they are keeping an eye… makes me nervous.
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No matter how confident you are in day to day things it is vital to have a buddy when you go to discuss results. For regular visits, a list is great. Doctors know all about “doorknob questions” the things that we remember on the way out, if we are lucky!
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Ha. Doorknob questions. I like that. Though in my case it’s more like Sitting On The Bus On The Way Home questions…
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I always have to write down my questions these days, so don’t feel like the Lone Ranger. sending good vibes (possibly toward your perineum?!! hah) snug your big orange cat for me xxoo
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