. . . and cats with cancer, it’s been quite an exhausting week.
Since Azar’s tumour explosion last Friday he seems to be slowly on the mend, though he gets “moments” when I can see he is in distress and probably in serious pain, and I don’t know what to do other than stroke him and talk a mile a minute in my softest lovey-dovey voice… he really does like to hear me talk. Anyhow, he and I are just taking things one day at a time (as if there were any other way).
You may recall that last Friday was, along with the exploding tumour incident, also the day for my monthly chemo port cleaning, which I almost put off until today (when I had an oncology appointment) so I didn’t have to make two hospital taxi trips in one week. But I decided not to leave things to chance (would be ironic for me to die of a blood clot after all this) and did a record there-and-back-again in less than an hour, basically taking taxis from door-to-door, so I wouldn’t have to leave Azar for long. I usually walk up to the main road and save myself a couple of euros in each direction. But I digress…
Because I’m really talking about cancer. And cats. And as much as I like to live in denial between PET scans, when one starts a-looming I start to get quite freaked out. As in, oh gawd, I’m still fat and drink too much wine and don’t eat my veggies and am doing everything wrong and am sure to be “punished”… except that Pat did everything right and now she’s gone. And Jed has been doing everything right and now he’s on chemo for life. And so, during this pre-PET freak-out period I stop living in denial, which reminds me of why I do it. Because IT’S HELL if I don’t. And this will now last until I get the results of my next PET scan.
I had a 12.45 appointment with Dr Ana today. Finally got into see her at 15.15. I actually hadn’t seen her since July 2011 because when I went for my 6-ish month review last January she was away and I saw someone else. So she didn’t know about my emergency op of last August. I told her and she looked it up on the computer and said “well, looks like they took good care of you”. Then she looked up my last blood test (July) and said it was all normal other than my thyroid whatsits were low and I should talk to my GP about that. And THEN she said… “so, do you want another PET now or do you want to wait a year?”. Well, thank you doctor. I said that until I hit the five-year mark I wanted to be tested every six months. Hey no problem. Out came the form, it was filled in and stamped, which I then brought down to Nuclear Medicine. Of course by then it was so late in the day that everyone had gone home, so I left it on Isabel’s desk with a note and that was that. And then I raced home in a taxi because I’d called Peter and he told me Azar looked like he was having problems.
Now, what should have happened today was me showing up at the hospital at 12.45 and, after a reasonable wait, I maybe would have seen Dr Ana around 1.45 or 2.00. Then I would have popped down to Nuclear Medicine to drop off my PET form and had a nice visit with Ricardo and Isabel. After that (as had been planned) I would have met Pablo for a nice lunch at a little tapas bar in his barrio (he lives not far from the hospital) where we would have had a glass of cava to celebrate me going to see the onc ALL BY MYSELF (first time guys!) and then I’d have come home and, happily sated, would have got back to work.
Instead, I didn’t finish with the onc until 3.30, and tapas bar kitchens close at 4pm, but Pablo (such a sweetie!) sent me a photo of a bottle of cava, saying he was putting it on ice and sent another pic showing the lovely late lunch he was preparing for us. But then I called Peter and heard about Azar… and dammit. I just had to go home. Where I found Azar curled up in his “safe place” under the tv table looking very forlorn. But in the end I don’t think it was anything worse than being in pain and needing the Big Cat (that’s me) to make a huge fuss over him. He’s now had a fresh bandage put on, has been fed with the syringe and looks as content as can be on the sofa. Honestly, I can’t think of anyone else I’d give up free cava for!
But hey, guess what? I am actually still a very high-risk-of-recurrance stage IV cancer patient. Which isn’t how I normally feel, but I sure felt like that today sitting in that waiting room for over two and a half hours. And now I’ll feel like that until I get the next scan results.
Meanwhile, lest I’d forgotten, I received a totally unwanted and, frankly, exceptionally crass email this week from someone called Lavinia Aparaschivei, a self-styled “relationship coordinator” who runs a website called Masters Channel. Click on that link if you dare. It’s full of the most grotesque “feel good think positive” garbage you probably couldn’t even imagine. How the hell this email ended up in my inbox is anybody’s guess but I felt totally slimed by it. Here’s what (in part) it said…
I just read about your amazing cancer survival story. Thank you so much for sharing it with us. Life is a gift and too many people take it for granted!
You can be an inspiration to many more. If you’d like to reach a greater crowd we provide a great platform in which heroes, people like you an me, get the chance to tell their amazing life stories. We provide this platform in pursuit of inspiring other people who are facing a difficult time ….. in pursuit of helping them overcome their struggles.
Well you know what? Fuck you Lavinia, and all of your kind, who think you can send emails to people and assume you know ONE FUCKING THING about the person you are addressing, let alone what they are going through. You and your website totally disgusted me. And I can just imagine what Pat would have had to say about you, which actually made me smile a bit.
There, that’s better. Now I think I’ll have another glass of wine, cuddle Azar a bit, and then get back to finishing some work on my blogs.
How’s your day been?
Amazing blog today. To hopefully tell you a better story than old Lavinia, my brother had CNS Stage 4 tumors, 2 of the blessed things on his spine. Not expected to make to Christmas, but 2 years later, numerous chemos, a total WBC transplant treatment, numerous PETs and other atrocities, and yes, he is still here. And jogging again, just generally living live. Hopefully you don’t mind hearing yet another cancer story, but at least this one is a good one, so far…
Just saying you never know, so do your best, and live life to the fullest. x
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A glass of wine sounds like an excellent idea! Obviously you have a lot going on, but it’s good to hear that you both are doing alright under these circumstances. Sadly we never know what life will bring (the last few years I’ve had a really tough time with a lot) but it’s good you and Azar have each other! I’m sure he appreciates you and everything you do for him more than you will ever know!
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Hi Azahar. Hope you remember me – I don’t post often but I do read!
If it cheers you up, I may be able to send some business your way soon. My parents are possibly coming to Seville as part of a 3 centre holiday (also thinking of Granada and Cordoba) so I obviously told them about your tapas tours and they are quite interested! Nothing set in stone yet but either I or they will be in touch if they go ahead with it all!
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I do so hate to be offered “inspiration,” so I guess I’ll pass on checking out the link!
I hope the scan results come soon. (And clear, of course.) I have to run, but I’m thinking of you and keeping fingers crossed for continued NED.
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I would utterly love to hear Pat do a job on any Lavinia that creeps out of the woodwork.
Big pats to Azar, who is worth whole cellars full of cava.
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Telling people to think positively & it’ll aid their recovery is such boswollox. It just adds yet more stress to what’s already a high-stress time.
I’m relieved to hear Azar just needed some tlc & reassurance.
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I totally agree! It’s like blaming the person with the struggle, that somehow, they weren’t “positive” enough, if things didn’t turn out better. Grrrr!!
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Excellent post today.
I had some dental surgery first thing this morning. I broke a tooth a while back and I’m getting a crown on it. Today was appointment two of three. Next week he super-glues the final crown on. I rolled into work this morning with my face contorted from the freezing.
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Hang in there, hon! Azar loves his Big Cat, and you’re his best therapy. Give him a pat for me. And I love cava…so that was indeed a heroic act, rushing home to your boy. 🙂 {{{hug}}}
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Definitely sounds like a rough day. I’m a “cancer survivor” (always find this moniker a bit heavy-handed), and if there is one thing I’ve learned from it, it’s to never generalize from experiences with cancer. Each type is unique, and each patient’s way of handling it unique. My case wasn’t as intense or problematic as yours (please forgive me for not going into details here), though I did the whole chemo thing. Out of respect for what sounds like a particularly rough experience, I’m not going to say I “understand” what you’re going through, but I can certainly relate to some things you write here… For example, despite now being several years cancer-free on a case that doctors always saw as a good prognosis, there is nothing quite like the 6-month check-up to undercut any feeling of confidence in one’s health. Remember those days when you were young and felt invincible? Yeah, me neither. Definitely more vulnerable these days. I still haven’t decided when I’m going to let myself believe that I’m healthy and normal now. And I don’t know about you, but I imagine it would somehow feel more immediately stressful coping with my cat’s cancer than my own. There is something about watching someone else go through this which is disempowering, and about the external which makes it more immediate and recognizable. (I suspect my wife suffered more than I did when I was under treatment.)
For what it’s worth, I study the cultural history of medicine, and when I was under treatment one of my profs loaned me two books which sit on opposite sides of the “suffering cancer with dignity” divide: Susan Sontag’s Illness as Metaphor and Anatole Broyard’s Intoxicated by My Illness. There is something to Deb’s comment above about the implied claim that “thinking positive” makes about the responsibility of the patient/sufferer. On the other hand, I recall that a lot of people (friends, family, and colleagues) who told me to “be positive” probably did so out of a sense of helplessness and a desire to do something. At times I also found it irritating when they said these things, but I knew that deep down it was meant well. Which is different from Master’s Channel, which seems to be leeching off the intensity of illness survival in a kind of self-help profiteerism. Ugh.
I’ll fight the urge to say “keep it up,” and just close with the very Texan salutation, take care!
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Big hug Shawn and Azar! I have been catching up on your posts. Take care of the cute black kitty and yourself.
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