
This is very true…
But a clean PET scan is the best birthday present ever!
I have to admit that I’m still processing all this. As many of you know, I was pretty tied up in knots about this latest PET scan (my fourth). Partly due to the timing … my recurrence last March happened six months after finishing chemo, and this was also six months since I finished chemo for the second time in July. And partly because for the past few weeks I’ve been experiencing some pretty bad abdominal pain. I was half-convinced the cancer was back, and started beating myself up for not doing the whole “anti-cancer” antioxidant diet, for not losing weight and getting super-fit, for not … being perfect? I dunno. I just felt I could have done better and was sure I was now going to be “punished” for not having done so (those sicko Catholic upbringings take a lot of getting over). Anyhow, I was a mess. And so, when I hadn’t heard from the hospital about my PET scan appointment last week I started pestering The Team…
I’d last seen my oncologist in November and had previously been told that I was going to be tested every three months for the first year after finishing chemo, so I was surprised when she said I wouldn’t have another scan until the beginning of January. Four months after my last CT scan. She was all – “oh, with the holidays and all” – and said she would see me again in February. And when I asked her whether I’d be having a CT or a PET scan she said … “oh, let’s make a PET this time”. Like, duh? Anyhow, I am very glad it was a PET this time because when the appointment got screwed up I was able to call The Team and ask what was going on. Later I started panicking on the phone (in the supermarket) when Ricardo called and said the appointment had actually been requested for the end of January. Five months??? No way. I began babbling on the phone about the pain, the fear, how I was already a month late for my scan … and Ricardo said he’d get right back to me. Which he did. With a PET scan appointment for the next day. Yesterday.
I can’t begin to express my love and appreciation for The Team – they’ve been there for me since I was first admitted for the emergency op back in May 2008. Who knew back when I was giving English classes to these guys in the nuclear medicine department (including the head of the dept) that ten years later I would end up being one of their patients? But without them, without that personal connection … I shudder to think of how different all this would have been.
And so, I got there for the PET yesterday morning, said hi to everybody, and finally got in for the injection, then the scan. Then Nog and I went offย for a much needed coffee and some toast (I wasn’t allowed to have brekky before the scan) and after that we checked back to see if I’d have to go through the machine a second time. Apparently it’s quite normal to have to do so, to double check any areas that perhaps hadn’t turned out as clear as they’d have liked. I’ve always had to have two scans (the second one is much shorter), but this time I was put through a third time! And in between I was up in the chemo room trying to get my port flushed. All in all, a totally exhausting day.
But the good news is that the scan looks clean. And once again I feel so lucky to have The Team behind me. I didn’t have to wait for the results. When Pilar first told me that everything looked good I asked when she would be able to call me back with the final report. She said probably later in the evening, but that she’d just be calling to say the same thing. And later (after the third scan) Isabel said they were all happy with the results… that the inflammation seen on previous scans had all but disappeared and that there were no tumours anywhere.
THERE. WERE. NO. TUMOURS. ANYWHERE.
And so … as I say, I’m still processing all this. I almost can’t believe it. I am at once so incredibly relieved and happy, but also almost too afraid to believe I’m okay. You can’t imagine how it’s been (well, I know some who know) living like this for the past year and a half. Between the operations and during the chemo there has been so much pain and fear. I’ve been so bloody afraid almost all the time. People often comment on how “brave” I am, but I’m not brave … and as I mentioned earlier, I really feel I have let myself down in how I have coped, and not coped, with all of this.
But at least for the next three months I will be eating those goji berries, drinking that green tea, and doing whatever I can do to help my luck out … so if the worst happens after the next scan then I will know I did everything I could. The next scan will be the two-year mark. I was given a 50/50 chance of surviving for five years when I was first diagnosed. And according to my onc, Dr Ana, those odds have not changed.
But, so far so good…










I’m so happy and delighted and relieved to hear that the PET scan went well, Az – a wonderful present on my return to regular internet access! ๐
But PLEASE don’t beat yourself up or feel that you need to eat goji-berries in order to somehow ‘deserve’ this clean, tumour-free scan. And as for ‘letting yourself down’ with how you’ve coped over the last couple of years; NO WAY! You have been honest and that means acknowledging the fear, but you have never given in to it – you’ve always picked yourself back up and got on with it, DESPITE the fear. I salute you. And If that isn’t the true definition of brave, I don’t know what is. In a situation like yours recently, being unafraid wouldn’t be brave, it would be naive.
{{{{{{hugs}}}}}} and a little dance of joy around my desk
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Quite the hugs, woo … can feel them all the way over here!
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Wow, that’s amazingly good news, Az. Congratulations, drink some nice red wine, that will be celebratory and vaguely good for you.
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Tis true, much switch to red wine. I’ve been more into white lately … lighter and fresher somehow. But it’s the red wine that is supposed to be full of antioxidants. It also goes great with cranberry cheese …
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Great to hear that fantastic news! um, but what exactly is a goji berry?
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Well holy-moly! I just looked up a link for goji berry info for you, and it turns out they are also called wolfberries. I like that name waaaay better. They have become the trendiest thing ever lately – so much so that they even have them in my eensy neighbourhood fruit & veg shop.
I don’t like them much. They are kind of tart and chewy. Not awful or anything, but I tend to scarf a few down like medicine … then have a drink of water.
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Congratulations! That is amazing, great news.
I don’t think you should be too hard on yourself though. If chocolate brings you happiness and Goji berries don’t – I’d opt for the chocolate, every time. Don’t get me wrong, I gave up anything salty and liquorice for my blood pressure – and nuts, fruits and almost all desserts for my allergies as once provoked the thing is rather lethal. I’ve also not picked back up the things I’m now allowed to eat again as my blood pressure has been cured.
Also – a tumour is one of the scariest medical things to have – it’s something growing inside of you and you even know it’s there until it starts to wreak havoc with your body. However – although you can help your body to be healthy – you can’t control how your cells split and multiply – sadly.
I think the important thing is to enjoy yourself, however you do that, and be happy. Not in a ‘last chance’ kind of way – just in a general kind of way. All of us should be happy more of the time – and that includes not being hard on yourself (even for the (lapsed) catholics among us)…
Go cuddle the cat, say thank you to Nog and the Team and enjoy the Tapas.
Congratulations again x (and sorry about the lecture ๐ฆ )
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Oh, lecture away! It’s always so cute when people try to tell me what to do… ๐
Seriously though, I do agree with you. There was a lot of “last chance” celebrating going on here this past Christmas and birthday. It somehow felt very possible (with all the scary pain) that they might be my last ones. Sure I had a great time, but it also felt quite sad and bittersweet at times. You know those people who say you should live every day as if it’s your last? They’ve never had stage 4 cancer.
Re: food, etc. I don’t care for chocolate, but I have been falling into comfort food eating and drinking more wine than I should. I actually think I’ve been suffering a bit of depression, at least at times. Which, along with the chemo brain, has made it very hard for me to focus and get on with things. So many days just drifted in to each other … but, the brain has been working better lately and now that I know the pain isn’t due to more cancer, I can deal with it. Heck, I don’t even mind the neuropathy in my feet if that’s the worst the chemo has done to me.
Meanwhile, I can eat a handful of goji berries and drink a few cups of green tea every day no problem (have found some green tea with lemon that I LOVE). I’ll also reread the Anti-cancer book that HMH sent me last year, paying special attention to the diet part. Whatever helps, you know?
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I’m in the midst of a cancer process at the moment, and we’re co-participants in PhotoHunt. I just wanted to drop in and say HOORAY for your clean test results.
As someone who is overweight, and was a smoker for 20 years, I have also been feeling like a failure for not ‘doing more’ to prevent or minimize my cancer. (Like, not smoking. duh!) But I’ve been trying to remind myself of all of the good things I do NOW, and part of those good things is making small changes to increase my healthy habits (which, incidentally leaves less time to indulge unhealthy habits), like walking everyday. I live outside Seattle, WA (USA) and some days my walk is just 15 mins, other days its an hour.
Also: I was having a LOT of post-surgery pain. Drugs (OTC) weren’t helping. So I finally found a clinical hypnotist and I’ve been to 3 sessions. It’s amazing. Basically, the pain is from nerves re-growing (!). So we are training my brain to ‘hear’ those signals and ignore them, like white noise. As foo-foo as it sounds, it works. My pain level dropped in half after one session, and has dropped successively since. (I’m essentially pain free now.) I bet you could find a ‘relaxation’ tape or CD that would get you started on thinking about your pain as unnecessary and therefore not stressful.
Anyway . . . back to you . . . . I think yummy food that makes you feel better is the healthiest food of all.
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Hey Lisa – thanks for stopping by and welcome! Very nice to meet you.
I used to smoke. Weirdly, I quit a month before the emergency cancer op. I knew I was feeling a bit like “something is WRONG” and at the time I was talking a lot about doing a detox/get healthy thing … then BLAM! Cancer.
Thing is, I was able to stop smoking with barely a twinge. Not drinking wine is more difficult. Don’t get me wrong. I don’t get drunk all that time or anything like that … I just really like drinking wine. Not vodka, not whisky … and I won’t drink just any old wine. And this is, I think, my worst guilt issue. And it’s probably what also makes it difficult to lose weight. Those 150 empty calories per glass. Because I really don’t overeat … my best friend & flatmate Nog eats way more than I do and he is barely 70 kilos soaking wet. Every time I tell myself I’m going to go for a couple of weeks without any wine I meet with serious resistance from my “inner idiot”, who gets all upset about having one of her creature comforts taken away. Anyhow … am working on this.
I saw on your blog that you LOVE your oncologist. Can I say how damn lucky you are and how bloody envious I am? Okay, I know I’m very lucky to have The Team on my side (friends who are nuclear medicine doctors at my hospital), but I would seriously love to be able to talk openly and honestly to an oncologist who isn’t looking at the clock and rolling their eyes at all my fears and concerns. I would also like to believe that the treatment they are giving me is the best available.
My post-surgery pain wasn’t so bad, though I think I have a stupidly high pain tolerance threshhold. It really takes a LOT of pain to get me to pay any attention to it. This is why PAIN scares me so much. I reckon that if it’s so bad that it’s interfering with my quality of life then it must be rather serious. Anyhow, with the yoga and now pilates classes, I am having less pain than a month ago.
Off to have more of a look at your blog now…
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My entire med team have been incredibly wonderful. But yes, my oncologist is a super nice guy who takes a lot of time talking things over with me to make sure I really understand what this is all about.
I tried to quit for months before I got the cancer diagnosis, and desperately tried before my surgery. Nothing worked. Except surgery. (I joke that the morphine/dilaudid regime is the easiest way to quit smoking.) Since then, I essentially never get cravings. I am extremely fortunate.
I was doing really well with my pain (I have a ridiculously low tolerance for pain) until just after Christmas, when it suddenly spiked, and the OTCs basically stopped working. Hypnosis worked (and I really didn’t expect it to.) I have more surgery on Wed, so I expect I’ll be giving hypnosis more of a workout going forward.
I am SO looking forward to being able to do yoga and Pilates . . . it’s likely off the table until after chemo though. Right now, and for the foreseeable future, walking is my only exercise.
I *love* red wine. I see it as a necessary part of my life. ๐ Frankly, if you’re eating high quality food, doing yoga and Pilates, and drinking wine, you are taking care of yourself. Its all about balance, and you and I both need to get right with our bodies once again before we start freaking out about being ‘thin’. Because healthy, for us, is not the same as healthy for Cindy Crawford. ๐
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Woot! That’s fantastic news! I’m so happy for you. And I’m proud of you, too. Even as much as you dread the scans, you rattled the cage until you got what you needed. That’s very pro-active — and yes, brave! — to do something you hate, and even insist it be done *sooner*.
Red wine with cranberry cheese? That sounds wonderful, and it’s probably a great source of antioxidants, what with the cranberries, and all. Cuddle the cat, and enjoy your snack, and start working on the cat to come… {{{{{{HUGS}}}}}}
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I did see a rather bedraggled looking kitten on the way home from a class last night. It wouldn’t let me get near it though. Might go back with some “bait”…
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(exhaling)
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Yeah, me too!
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Fantastic news, drinks all around! Happy for you.
For some odd reason, the first thing that popped into my mind was a saying that my buddy Bert says now and then. He had a bit of a prostate scare some years ago and he changed his diet to one that had more antioxidants. His explanation to me was this- ‘It’s simple, bud. Be good to your hoop and your hoop will be good to you!!’
Cheers!
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I do feel a sudden renewed motivation to start helping my body out more. I think that, especially the last month or so, there was a kind of “oh, what difference does it make” thing going on. But now I reckon that, if my body has kept away the cancer cells this long, then the least I can do is give it a hand to make things easier. Not that I was eating really badly or anything. Just not as well as I could have.
And I’m also going to be starting back at pilates class this week. Was supposed to go yesterday but the PET scan suddenly came up, so tomorrow will be the first one since the hernia. Then it’ll be Monday-Friday mornings at the gym, and long walks on the weekends (if it ever stops RAINING!).
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Terrific news! Hurray!
Hugs all round!
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I never say no to hugs! ๐
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The Goji berries make me think of zereshk or barberries which are used in Iranian cooking. Sort of a mini cranberry. Some are sweet and some are tart. I put them in rice or pilau to add a bit of colour and flavour.
http://en.wikipedia.org/wiki/Berberis
http://en.wikipedia.org/wiki/Zereshk
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Yeah, the goji berries are rather like a dried cranberry. My student told me yesterday that he soaks them in milk for about an hour and then puts them in yoghurt. Hmmm…
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Great news!
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Yep, I’m still reeling. And okay, I know it’s just a three-month reprieve, but damn it feels good. ๐
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Wonderful news!
I tried Goji berries once. Nasty things.
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Just had a few with my after-yoga green tea. Bleh.
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Brilliant news! What a great start to the new year (and new decade unless you’re pedantic…)
Don’t think I’ve ever tried Goji berries, but cranberry cheese sounds yummy.
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It’s cranberry Wensleydale! Very crumbly and delicious. I hope the Corte Inglรฉs didn’t just get it in for Christmas.
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This is Very Good News
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Oops – the hug fell off that post because I stuck the wrong parantheses round it.
Try this one :hug:
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Hug received. Thanks. ๐
I put away all the Christmas stuff last week, but still have your wonderful book sitting out. It just makes me smile every time I look at it.
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Fabulous news! Rioja galore and mindless party now ๐
{{{{{{{hug}}}}}}}
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Party? Me? Oh alright, if you insist…
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Fantastic news – I’m with Sledpress – “Aaaaand breathe”
Did the scan show anything that might be causing the “scary abdominal pain”? Or is that easing now that the nerves and everything else are subsiding?
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The abdominal pain comes and goes. It’s certainly not as bad as a couple of weeks ago. Isabel said it was probably the scar tissue and hernia, which makes sense. Also, all this cold damp weather is probably not helping. I was getting shooting pains in one of my feet (where it’s gone numb from the neuropathy) the other day, and I’m sure that was because of the cold and damp.
I’m usually pretty good at dealing with pain, as long as I know what’s causing it. It’s dealing with FEAR that I’m totally crap at.
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Well lets hope that the fear and anxiety was contributing to the pain – so hopefully you get into something of a virtuous (rather than vicious) circle
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Shawn, am thrilled for you. No lectures, no empathies with what you go through, just thrilled.
Was watching for your tweeets yesterday. I could tell that you were in a bit of a tizwoz. Just back in from a morning out, an checked the RSS reader before logging onto Twitter and I thought “I must tweet Shawn and see how she is”
๐
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And I’m thrilled that you’re thrilled, etc … isn’t it fabulous?
If I start making some money I’ll try to get down for one of those Marbella Twitter meet-ups, especially as I have an apartment there I can stay in (not the Mรกlaga one – Manolo has another place in Marbella). It would be great to meet you in person.
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Fantastic news Az. Fear can be crippling and it’s always better to know, I think, but when the knowledge brings good news – well, that’s just wonderful!
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You’re so right about FEAR being crippling, Deb. It’s actually worse than if the fear comes true, because then you’re dealing with TRUTH. Anyhow, at least for now my truth is a very good thing.
I’ve been going around all day like George Bailey in It’s A Wonderful Life … going YAY! at everything. ๐
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Sorry I missed your tweets yesterday, but I just saw the announcement on fb and I am absolutely stoked for you – this is really wonderful news. I confess a little tear in the corner of my eye when I read
THERE. WERE. NO. TUMOURS. ANYWHERE.
WOWWWW!!!
You and Nog must have been feeling pretty euphoric after that, I suppose a celebration of some sort is on the cards? What an incredible birthday present. Happy Birthday, and I’ll raise a glass to many more when I pop open a bottle of tinto with dinner tonight.
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I’d really like to celebrate by taking Nog to Tangier in March for his birthday, but will have to start making some money first. Otherwise, I kind of did all my celebrating over the holidays. Lots of nice memories…
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I raised a glass to your health last night, and my two friends at the table concurred and wish you well. Even though they don’t know you they thought the gesture ws nice.
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Thanks, Andy. When you finally make it to Sevilla we can raise a glass together. ๐
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I’m doing the Happy And I Told You So Dance! Hooah!
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Ha! And I told Nog you were going to show up saying “I told you so”. ๐
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I’m so damned predictable! Drinking some red wine in your honor, toasting your continued health.
Now, about that abdominal pain. I think that the person who has told you that it is very probably from scar tissue is correct. Quite often when surgeries are healing you get adhesions between different tissue layers and muscles as the incision heals. Then when the person who has the scars starts doing more activity, the adhesions between tissue layers start to pull on each other and they get pain. I would say that by this point you are completely healed from surgery, and so it will not be detrimental to you to start massaging the incision areas where you have scars. Just put your fingers there in the area and start doing gentle circles all over the scar tissue area. As your comfort level indicates, you can keep working deeper and deeper, and you can break up those adhesions and then the pain will stop being such an issue.
I also am going to go out on a limb here and say that it is quite possible that your neuropathy will gradually correct itself. Anti-oxidants, especially alpha-lipoic acid (found in broccoli, liver, yeast, potatoes for a few sources), have been shown to help reduce neuropathy. As your body continues to detoxify from the chemo drugs and your system starts utilizing nutrients the way it was meant to, your neuropathy may gradually disappear.
Anyway, I’m continuing to visualize No Evidence of Disease for your future coupled with complete loss of Chemo Brain and cessation of all Neuropathy.
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Well, I sure hope you continue being predicable … especially where your predictions are concerned.
And I shall take your advice about massaging the scar area. It’s often felt better after a yoga class, so I’m sure the stretching and movement is doing it good too.
My onc gave me some sort of vitamin B6 compound to help with the neuropathy, but I kept forgetting to take it. Am back on multi-vitamins now, though I get nauseous every time I take one. I think because they are roughly the same size and shape as the chemo pills. Bleh.
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Great news! I’m soooo happy for you. And relieved. I feel all teary now.
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Awwww… thanks! I really want to see those kids of yours when they’re grown, if only to see if they can possibly get any more adorable.
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Az, that is the *best* news I’ve heard in days – so happy for you!
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Gracias, amiga. And, as you saw, I’m back on the Colon Club forum. I just needed a break from “cancer talk” for awhile, especially when I was feeling so afraid myself. I didn’t feel like I had anything to give anyone else there. It was nice catching up with a few people today. I think I’ll stick around …
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Well, a big heaving “Whew!” and a couple of hugs from our little corner of Canada….
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Thanks Lori (and you too, Ted!). Unless those extra hugs were from the cats…
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:hugs: from the Lair as well
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Thanks, dq. Hope you and the cats are well.
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Fantastic news az! I am convinced that fear and anxiety can produce pain, so maybe now that you have had such good news, the pain will disappear.
Woo-hoo!
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Well, it certainly helps to not feel afraid of the pain anymore. Thanks, Puddock. ๐
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