Let’s recap here, shall we? About a year ago my new oncologist told me I was cancer free and no longer required further tests. She said to me – and I quote – “If that pain comes back then go to emergency”. But I was no longer on the watch list for possible cancer recurrence. WTF? As most people know, by the time you are in any kind of serious pain because of cancer, you are pretty much already dead.
Meanwhile, to this date nobody can explain why I’m even fucking alive, and apparently my case flummoxed pretty much everyone who was involved with it. This is why I had regular PET scans, twice a year for five years after my last chemo in 2009, then once a year for the following five. And then in January 2018 suddenly there was some issue about an inflammatory area that had increased from one PET to the next, and suddenly I was seeing a new onc who gave me a whack of other tests: CTs, colonoscopy, endoscopy… and then pronounced me cancer-free. As in, you can go away now.
I pushed hard to have at least SOME kind of follow-up testing, so new onc agreed to an abdominal ultrasound last summer. And guess what? There was some dodgy stuff there they couldn’t explain so the techicians requested an MRI on my liver. THEN I got my “mystery pain” back again, so the onc decided to do another CT because “they are more thorough”. Okey dokey.
Results from that CT showed more dodgy stuff, this time in my stomach, so I went for another endoscopy a couple of weeks ago, and they took some biopsy samples. The onc had said I should book another appointment with her when the biospy results were in (because I am supposed to know when that is, right??). Which brings us to today.
First, I received a call from the hospital today around 2:00 pm saying I had an oncology appointment on January 21 at 1:15 pm. Well okey-dokey. I just thought the biopsy report was ready and my onc wanted to give me the results. Though I was a bit concerned that they had actually called me… usually I have to hunt them down to get my next oncology appointment. So I wondered if this meant they had found something scary.
THEN LATER THAT SAME DAY I received a call from radiology at 5:00 pm saying I had an appointment on Monday – this coming Monday! January 13! – for an opaque enema. I didn’t know anything about this and don’t even know what a fucking opaque enema is (have since googled). The woman who called me from radiology was also confused. She said the request was filed today by my onc and was marked as preferential, meaning is should be sped through, so she called me when she saw that there was an opening in their schedule on Monday.
Then she explained the test preparation, a special diet for two days before and then the day before taking what looks like the same preparation for a colonoscopy: the dread envelopes of gack that you mix with water and down for an entire evening that totally cleans you out. But of course I don’t have the envelopes! And it’s Friday late afternoon. So then the woman told me that I would have to go to the hospital NOW and pick up the envelopes if I wanted the test on Monday. Well … impossible.
By this time both of us were very confused as to why my oncologist had requested a speedy test like this without even informing me. Anyhow, the next “preferential gap in the schedule” is January 23, two days after my next appointment with my onc on January 21. This works well for the opaque enema test because then I can pick up the dread envelopes that day and start with the two-day prep, but now I’m guessing she wanted the enema done before she sees me on the 21st? Well, who knows? And why should I be fucking have to guess about this??
Seriously … what kind of doctor makes scary test appointments for their patients without informing them in advance? The Radiology woman who called about the opaque enema appointment assumed that I had seen my oncologist this morning, and that’s why the request was made.
Meanwhile, my oncologist also has my mobile phone number. So if she had picked up the phone and said to me – sorry Shawn but you need to get this test done as soon as possible, it’s important – then I would have been in a taxi in a flash going to pick up the envelopes at the hospital. But as of now I still have no clear idea why this test was requested and I am really trying hard not to jump to conclusions or panic. And now I am going to Netflix with my cats. Can’t take any more bullshit today.
Deb Barnes said:
Well that’s just utter crap. Does this doctor have any kind of clue? In fact is she even human? She seems to have all the sensitivity of a lump of coal.
What an awful cloud to be under, will you call her on Monday to get some answers?
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azahar said:
It’s impossible to call her. But I will get a copy of the biopsy report on Monday so I have a better idea about what’s going on.
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Paul Lancaster said:
Can you buy the jollop at the chemist? Whatever the reason, a quick test sounds best to be ready for your appointment. Attending your appt and being told that you have to come back after the test will drive you nuts!
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azahar said:
I will get the biospy results at the next oncologist appointment, though I plan to get a copy next week so I can be prepared.
No, when the radiology person realised I knew nothing about this test she rescheduled it for the 23rd. In any case, it doesn’t sound like the test I need. They should do another colonoscopy if they are concerned.
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mudhooks said:
WTAF?
Seriously.
WTAF?
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azahar said:
I’m furious. Working out next plan of action…
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mudhooks said:
Keep me posted…
My brother is in hospital recovering from a serious car accident in the early hours of Monday morning. He was the passenger. The driver walked away (literally… she’s claiming that he was driving. Since rescue had to remove him on a backboard and cut him out of his clothes, the police aren’t fooled)… He had a burst vertebrae, had 7 hours of surgery to fuse 3 vertebrae, and rods screwed onto his spine. The estimate at least 6 months before he can walk… but he will walk.
It is amazing what they can do.
But I also marvel at the complete lack of sense used by some doctors. Your’s case in point.
I remember that this was not the first oncologist who treated you so cavalierly in your cancer “adventures”.
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sledpress said:
I’d hit the Like button but I can’t. I hate this. This is like the gynecologist who ghosted my ultrasound so that six months later I was shaking him by the lapels and he was saying “oh, then we should send you for an ultrasound.” What is wrong with people?
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azahar said:
I think mostly they are overworked and are forced to stick to strict budgets, but I don’t things are so bad that I should be expected to rush out for an invasive test without even knowing WHY they have requested it. Obviously there is a time issue here, which is worrying, but you know… pick up the goddam phone and talk to me. In any case, I couldn’t have done the opaque enema on Monday. This is nuts.
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sledpress said:
Just know that I’m now thinking about you several times an hour. Because I’d be hysterical if someone pulled that shit on me. Pet dem catz.
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