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Tag Archives: chemo port

it’s gone

12 Thursday Feb 2015

Posted by azahar in cancer, chemo, home, hope, hospitals

≈ 13 Comments

Tags

cancer, chemo, chemo port, home, hope, hospitals

prep room

The prep-room at the hospital. My appointment was at 3.00 today and l arrived right on time, expecting to wait at least an hour before my name was called. Five minutes later l was undressing in the prep-room and waiting for the nurse to stick a shunt in my hand (just in case). Turns out all the prep (blood test, no eating, NO WATER for 8 hours) was just in case that happily wasn’t necessary. There was some serious stabby pain when the local anaesthetic was jabbed into my chest, but other than that it was a breeze. The whole procedure took about seven minutes.

My only regret was that I didn’t get a photo of my ex-port lying in the pan. After all, we’d lived together for almost six years. In fact, I asked after I’d got dressed again and the nurse said “oooh, you should have asked straight away, we’ve thrown it into the bin now”. Apparently they didn’t think this was a weird request. In fact, I’d had a couple of other questions for them, prefacing with “I hope you don’t mind…” and they were lovely. The surgeon said there were no silly questions and that it was important that I felt at ease. ALL women on this team today. Not to say that men can’t be understanding, but when you’re yanking something out from between someone’s breasts I’m guessing there’s just a bit more empathy there with women.

First thing I did after I got out of there was drink two huge glasses of water. And this evening I’m just chillin’ at home with the cats and feeling so glad to have this over and done with. Until October. Turns out I only get a 6 month hospital break this time after all (the 6-month PET would’ve been in March) but if all goes well in October then I will get an entire year off from hospital visits. Wow. Seriously wow.

it’s coming out!

09 Monday Feb 2015

Posted by azahar in cancer, chemo, hope, hospitals

≈ 7 Comments

Tags

cancer, chemo port, hospitals

chemo-portI got the call today!

On Thursday afternoon they’re taking out the chemo port. And, like, wow… I don’t even know how to feel about that. I mean, it’s good timing as I would have had to go and get the damn thing flushed out this week anyhow. Though as it is I’ll have to make an extra hospital trip tomorrow to get blood work done so they can check coagulation. I remember when I had it put in, not thinking twice about it because the idea of having any more chemo pumped through my poor hand veins was more than I could bear. So even when the chemo port “post-op” proved a bit more painful than I’d expected, well, it was nothing compared to the alternative.

Of course now I’m all nervous. And almost afraid to give it up, you know, just in case. It’s like I’m tempting fate or something, like it’s too hard to really believe that IT won’t come back. Anyhow, my appointment is for 3 pm on Thursday. Can’t eat after 7 am, which won’t be a problem. But they told me I can’t even drink water. I don’t remember that from last time. No water?? I need to find someone to come with me as I’ll be sedated and have a local anaesthetic so may be woozy afterwards. And then I’ll go home. And I won’t have a chemo port in my chest anymore. Huh?

port cleaning queue

05 Tuesday Jun 2012

Posted by azahar in cancer, chemo, hospitals

≈ 1 Comment

Tags

cancer, chemo port, hospitals

So most of you know by now that just over four years ago I was diagnosed with stage IV colon cancer with metastasis to the liver, blah blah blah…

The second time I had to go on chemo (April 2009) I was saved from frying what was left of my hand veins by having a chemo port surgically installed. Actually in a bit of an awkward place, right between “the girls” (most diagrams I’ve seen of ports show them higher up and to one side).

Anyhow, as I am still considered high risk for recurrence the port will probably stay in place for about five years and it requires monthly maintenance – a flushing out and then an injection of an anti-coagulant so that the tube doesn’t get blocked up with gunk and end up killing me. And so yesterday I headed over to the hospital for the monthly port cleaning.

Sometime last year they moved port cleanings over to the blood lab building, which at first I though was a pain because I could only go between 12- 1pm. But after going a couple of times I realised that it was way better than going to the chemo room and waiting sometimes up to an hour and having to see all the others undergoing treatment while I had the port cleaning done.  At the blood lab there is normally nobody there when I arrive and I am in and out in a flash, and am even on a first name basis with the nurses.

But today there was a queue. Not a huge one, just four other people ahead of me. So no problem. Except that all of them were obviously so much younger than me, perhaps in their early thirties. And that made me so sad…

chemo port cleaning

06 Tuesday Mar 2012

Posted by azahar in cancer, health & happiness, hope, hospitals

≈ 9 Comments

Tags

cancer, chemo port, hope, hospitals

It was that time of the month again today – chemo port cleaning time! It’s actually been a bit better since they changed their system and I go to the blood lab next to the main hospital building rather than the room where everyone is getting their chemo infusions done. Doesn’t *quite* feel so much like going to the hospital. But I still taxi there and back. A bit of a splurge, but it takes the edge off by going in comfort rather than having to get on a crowded bus, etc.

So after today’s procedure (you can see a tiny white bandaid in my cleavage there – dig that crazy shirt!) I decided to pop over to the Nuclear Medicine department to see if either Ricardo or Isabel were there and ask them if I could get a copy of my last PET scan results. Ended up having a nice visit with Ricardo, talking about travelling and this & that. Finally got around to discussing the whole cancer thing and when he asked how I was feeling I said I felt quite okay, but also felt I should be taking better care of myself. His reply was that we all should and that, although I still have this thing looming over my head, something else could come along and “get me” so probably best to just get on with things and not dwell on it. And you know what? He’s right. He’s also one of the very few people on the planet who could actually say that to me and not make me want to rip their head off.

But the chemo port cleaning is a monthly reminder that I have this port imbedded inside me FOR A REASON. Which is that I’m still considered very high risk for recurrance. Hard not to think of that sometimes, but today talking with Ricardo helped.

Now I’m off to meet a group of 8 people from Thailand and take them on a tapas tour!

What did you do today?

pokies are no jokies

04 Thursday Nov 2010

Posted by azahar in cancer, hospitals

≈ 17 Comments

Tags

cancer, chemo port, emla

As most of you probably know, ever since I got the chemo port put in and then stopped treatment (end of July 2009) I’ve had to go to the hospital once a month to get my chemo port flushed out… otherwise it could get blocked and, well, kill me. And since I am still considered high risk for recurrence I’ll probably have the port in for the next few years. But even though it’s a bit of a nuisance to go and get this done every month, at least that’s all it is now. At first, after my last chemo, every trip to the hospital was fraught with fear and anxiety and I always needed a “hospital buddy” to come with me. But then one day there wasn’t anybody and I needed to get the port flushed out, so I bravely got into a taxi and went by myself (twittering like mad all the way – and bless everyone who tweeted back at me). But I did it, got there and back again without falling apart. So from then on it got easier for me to go on my own for the chemo port thing (though going in a taxi is still necessary to avoid panic attacks).

The actual cleaning itself isn’t too bad, and I’ve learned that if I get there after 7pm I’m pretty much in and out in about 20 minutes. Sure, it’s still hard to walk into the chemo room and hear the beeping machines and see all the people getting their infusions – my heart really goes out to the ones who don’t have chemo ports and are getting it in the hand or the arm (ouch!). But in general I’m okay about going to do this on my own now, though it’s a bit hit and miss with the nurses. Some are quick and efficient, others seem more than a bit clueless (they scare me!) and others look visibly annoyed when I ask them to remove the air bubbles before sending a whack of saline back into my vein.

About three months ago I had a male nurse do the procedure and when I saw him painstakingly lay out all the stuff needed I thought – “uh oh, a newb!” – and wondered if he knew what he was doing, especially when he seemed to be missing one syringe full of saline. So after he finished I asked why he used one syringe less, which got him flustered so he went off to check, then came back and said I was right, was all apologetic, and said he’d do it again. Well – ouch. But better to have it done right… right?

Then last Tuesday evening I decided to go get the port flushing over with (had originally planned to do it today), got in a taxi and was actually pleasantly surprised to see the same male nurse. And he remembered me, and told me how he’d just taken a booster course in port cleaning and that I had nothing to worry about. Ah, he made me smile as I watched him carefully lay everything out in his meticulous way. He also made me laugh when he said he hoped there wasn’t any sad reason I was dressed all in black – I wiggled my red earrings and toes at him and said I had happy accent colours. And when I said “hey, watch it with the bubbles”, he very seriously explained how he never uses the last bit in the syringe as that’s where the air is trapped. And so I decided I loved this guy and always wanted him to be there when I went to get my port flushed out, this guy called … Wenceslao?? No shit, I glanced at his name tag and that’s what it said. So I said… “You’re name is… Wenceslao???” And he was all “Well, I don’t see what’s weird about that, you guys have that song about that king…” and I fell in love with him even more. My huge bald bear of a young male nurse wearing bright yellow crocs and called Wenceslao, who takes such excellent care to do the port flushing just so.

After it was done he asked if I was in a hurry because he wanted to show me something on the computer that he’d learned about in the last course, in case I wanted to try it for next time … and it was this Emla cream. It’s a topical anaesthetic and Wenceslao told me if I got some I could put it one hour before coming and then it wouldn’t hurt when I got, um, poked. Because that’s what the image on the computer screen said (same one as here)… pokies are no jokies. And then he leaned over and muttered under his breath… “what’s a pokie?” So I poked him in the arm with my index finger and said I’d ask my GP (Agustín) about it. But another nurse had been watching us and said there was tons of Emla in the nurse’s station, so Welceslao got me a tube and some bandages (“you don’t want to stain your blouse”) and got me all set up for the next time. I didn’t have the heart to tell him the pokies didn’t actually bother me much. It was too sweet of him to go through all that trouble, so I will indeed use the cream next time and hope I catch his shift. I should have asked for his mobile number so I could call ahead and check. Next time…

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