Tag Archives: pet scan

keep calm and cuddle cats…

20 Tuesday Oct 2015

Posted by in cancer, cats, health & happiness, hope, hospitals

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calm cats

Yesterday morning while I was working on the computer, answering some emails, flatmate Peter suddenly said to me, “now don’t get mad…”

Turns out while I was away in Jerez the hospital called the landline and told Peter that my PET scan was going to be on Tuesday morning at 8 am. And he forgot to tell me! Like, wtf? How the hell do you forget that sort of thing?? Anyhow, that meant the scan would be THE VERY NEXT DAY. Today.

So I spent most of yesterday fighting off scanxiety. Luckily I had a meeting in the morning with my lovely WLT chicas, and then a lunchtime tapas tour, to help keep my mind off things. Then in the evening I did just “whatever” until it was time to go to bed. I really couldn’t focus very well. Too many feelings.

By the time this post goes up I will already be at the hospital, pumped full of radioactive isotope and waiting to go into the machine. And I will be trying to remember how I felt when this photo was taken on Sunday morning. I was back from Jerez and enjoying coffee in bed with the cats, listening to the rain, feeling happy and calm. But I know I will actually be terrified. See you on the other side…

the 5 year club

28 Tuesday Oct 2014

Posted by in cancer, change, friends, health & happiness, hope, hospitals

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pet tac

Today marked a very important milestone for me. I had my “5th anniversary” PET scan – which came back clear! – marking five cancer-free years (I finished my last chemo at the end of July 2009). I almost couldn’t believe it when Pilar texted me while I was out having coffee, saying that everything was okay. In fact, I burst into tears. This one is a game-changer. I won’t know exactly what they have in store for me now until I see the oncologist again next month, but today should be the last of the every-six-month PET scans (will switch to either once a year or possible every 10 months) and I will finally be able to get the chemo port out. That last one will be a relief and I won’t have to make my monthly visit to the hospital to get the thing cleaned out. So it’s all good.  I mean, I’m not “out of the woods” yet. The 5-year mark is kind of random and my case is more baffling than anything. Most stage-IV people don’t stay in remission for this long. But hey, I’ve made it this far and at least for now I am fine, so it really does feel like a fresh start.

As always I want to thank my amazing Nuclear Medicine team – Pilar and Isabel (Ricardo retired last year) – and also all of you for being there with me through all of this. You can all take the next year off.  😉

A side note: October 28th is the saint day of Santo Judas Tadeo (Jude the Apostle) patron saint of lost causes. Coincidence?

here I go again…

08 Tuesday Apr 2014

Posted by in cancer, health & happiness, hope, hospitals

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petexam… PET scan time! By the time many of you read this I’ll probably already be in the machine, since I have to be there early, around 7.45. The plan is to get home in time to do my lunchtime Sevilla Tapas Tour, which was booked long before I knew my scan date. Peter is on “standby” in case I get bad news as I rather doubt I’ll be in the mood to be sociable if that happens. As you can tell, scanxiety is much the same as always. Hoping for the best, terrified that I might hear the worst, wishing I’d eaten more broccoli, had drunk less wine, etc, etc.

But if all goes well this might be my last every-six-months scan, although I don’t “officially” hit the five-year mark until the end of July. If I do “graduate” to once-a-year scans then I think they may also remove the chemo port, which would be a relief. But I’m getting way ahead of myself. I just want to be okay. I know that I’ve been incredibly lucky so far. Please, please, please let my luck hold out some more. I really want to watch Morcilla grow up.

Fingers crossed everybody!

PET scan check-list

25 Wednesday Sep 2013

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PET-CTOn Tuesday I started wondering why I hadn’t heard back about my next PET-CT scan so I sent a text to Isabel and that very afternoon I got a call telling me that I was scheduled for the scan on Thursday at 8 am. Which is TOMORROW. So well, fuck.

I was mostly okay about this yesterday but today I’ve kind of lost it. I checked again online to see what the proper PET scan prep is and have been sticking to it, even rescheduling tonight’s tapas tour for tomorrow so I could stay in and get an early night. But I’m such a nervous wreck.

I keep thinking about Pat and how, after four years of being cancer-free, she had a recurrence and not long after that she died. Just to say that I can never take it for granted that I’m going to be okay. And so I am, as always, hoping like mad that I will once again beat the odds tomorrow and be given another six months.

Had lunch with my friend Juan yesterday and told him how it would feel really extra cruel to get sick again after my life finally feels like it’s the one I’ve always dreamt of. I’m doing work I love, in the place that feels like my real home in the world, my social life is also fulfulling and I’m even starting to not be so hard on myself all the time. Also I have three young cats that I want to watch grow up. So please please please let me be okay tomorrow. Fingers crossed! xx

[UPDATE: ALL CLEAR! Another six months for me! 🙂 ]

all clear!

12 Tuesday Mar 2013

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pili and meHUGE sigh of relief… my PET scan was clear today and so I get another six months. I do wonder if this is becoming “routine” for those reading and – like with some people I know  – I get the “oh, don’t worry, you’re going to be fine!” thing beforehand and the “I knew you’d be okay!” afterwards. Which I know is a way of people saying that they are hoping for the best. But sometimes it feels like it is diminishing my own feelings about these tests.

I will be having PET scans every six months until next year and, if all is still well by that time, the scans will then be reduced to once a year. Why? Because I am still considered very high risk for recurrence. And why do I worry so much when I’ve had clean scans for the past four years? Because I’ve already lost a dear friend who was “cancer-free” for four years and another dear friend has been struggling through his latest recurrence for the past year or so. Trust me, these tests are very expensive. They don’t just do them as a matter of course – you have to be considered high risk.

Which is me.

botaniAnyhow, I went off in the rain early this morning and was thrilled to see that the lovely Pilar was a part of my PET team today. She is such a lovely person and a long-time friend. You may recall that back when I was sick on chemo and desperate about how I was going to get through the summer she gave me a month. So it was great finding out that she was on duty today. After my first run through the PET machine I sat with her in the computer room watching my scan images spinning around… first time I’ve ever done that. Pili showed me how this bit was like this, another bit like that. Kind of cool and also a bit freaky. Then we went off for breakfast and after that I had to go through the machine again (this almost always happens because I have a dodgy area that needs rechecking) and then suddenly I was okay!

But you know, after all the build-up of stress and worry it actually takes awhile for the Good News to sink in. So Peter met up with me and we went for a celebratory glass of Botani at the Vineria San Telmo, and then it was a walk home in the rain…

Now I’m here all cosy and thankful and kind of floppy, to be honest. This whole ordeal really takes it outta me. So I think I’ll just take it easy this afternoon and evening. The Next Six Months can start mañana…