Category Archives: health & happiness

difficultitis

07 Monday Oct 2019

Posted by in health & happiness, hospitals

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Difficultitis – a chronic condition arising from repeatedly trying to get your doctor to take your complaints seriously. Symptoms include frustration (mild or otherwise), a sense of helplessness, loss of sleep and occasional tears. Although the cause has been well established there is so far no known cure.

I went to see the oncologist today fully armed with notes and print outs of the results from my last ultrasound and blood test, ready to tell her about my latest bout of diverticulitis, and ask about getting a blood test to check for possible infection. And well, that almost happened.

First of all, the possibility of having diverticulitis was shot down when I was told that my last colonoscopy (done a month after I had the first abdominal pain episode) didn’t show any evidence of diverticula, hence they couldn’t be inflamed if they’re not there. Okay…

So I went through my questions and the doctor said that, because of the new pain issue,  instead of an MRI (which had been recommended after the ultrasound) I’d be having a CAT scan. Even though I’d read that an MRI is much better than a CAT for detecting liver problems I was assured that a CAT was a preferred “two birds with one stone” approach. So, okay…

I asked the doctor if she had any idea what might be causing the abdominal pain (accompanied by shooting pain in my right arm and shoulder, just like the previous time) and she said no, and that this was why I was getting another CAT scan. And that was it.

My feeling is the liver issue is probably more important than this recurring abdominal pain thing, so a more specific test for that might be better? Rather than a shotgun approach to check out the entire abdominal area. Oh, and I had mentioned that the previous time I went to emergency with the belly pain they did a blood test to check for infection, but then forgot to ask if I should do this again, especially as I am supposed to be travelling next week and the CAT scan probably won’t be for a couple of weeks at least. So now I’m left waiting again.

I really miss my old oncologist. I felt she actually listened to me. Sadly she ended up with cancer and retired shortly afterwards. I mean, this new one is better than some of the awful ones I’ve experienced, but I just don’t feel “heard”, if you know what I mean.

diverticulitis

04 Friday Oct 2019

Posted by in health & happiness, home

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Remember when I got a mystery lower abdominal pain a couple of years ago? It began mid-November and lasted until I had a PET scan near the end of January, and was similar to something that occurred a couple of years previously. WELL IT’S BACK!

The abdominal pain (lower left hand side) started up again on Wednesday. I’m not talking about the usual discomfort I have due to adhesions, hernia, etc. I’m talking PAIN. But fuck it, rather than race to emergency again, I decided to leave it until I see the oncologist on Monday (FINALLY got an appointment). Then I was talking to my friend Ann about this and she said “sounds like when I get diverticulitis”. Say what? So I googled diverticulitis and there were my symptoms to a T. But I mean, wtf? You’d think the many doctors I have described this problem to would have also heard of diverticulitis, no?

Anyhow, learning that this is a fairly normal disease and is rarely life-threatening (though it can be) helped me relax a bit. And now I have a bit more “ammunition” for getting the scans I need when I see the onc. I had an ultrasound done a couple of weeks ago – a month later than it should have been – and they recommended an MRI because they found a couple of dodgy bits in my liver they want to check out further. So now I have to press for the MRI and probably another colonoscopy. DYI post cancer revisions.

And another amazing thing! I casually mentioned to Ann that the radiating pain in my right upper arm had also returned, and although I was sure they couldn’t be related I also thought it was weird that I had this exact same arm pain during the two months I had the belly pain. And good ol’ Ann sent me this…

Referred Pain in Right Arm from Abdominal Wall Pseudoaneurysm

I mean seriously, who’da thunk it?? Especially as I mentioned the arm pain to the oncologist two years ago and she said it had nothing to do with the abdominal pain. I know I know… diagnosing yourself on the internet isn’t often accurate (or advisable) but it sure does seem like these two problems have been explained, and that they are related. So now I just have to get through the next few days and maybe also get a blood test done to check for infection… it’s always something.

still walking…

30 Monday Sep 2019

Posted by in health & happiness, sevilla

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Loving my daily walks. Since I started I’ve only missed a couple due to work and other obligations, though I still rack up between 10,000 – 16,000 a day. I actually feel a bit bereft it I can’t do it, a sure sign that it’s doing some good for me. The great thing is that I can do this any time of day that I have a spare hour or so, and that I can also do this in my normal clothes (not gym clothes) which means I can do errands before or after the walk. This photo was taken after seeing my GP early evening, so I did the walk in reverse and caught a lovely sunset on my way home.

time to get walking!

06 Friday Sep 2019

Posted by in health & happiness, home

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I’m usually pretty good at walking every day, though during the summer heat it’s more difficult to reach that 10,000 step goal (and even then it’s mostly strolling, not WALKING). After I moved I stopped going to the gym because there isn’t one close to me here, and I’ve really been missing some sort of daily exercise. And so this morning I decided that this was the day to start serious walking again. By that I mean doing a proper fast(ish) paced uninterrupted walk for an hour each day.

To be honest, I’ve been planning to start doing this for ages, and thought that having most of August off would be a good time. But in fact I used August to learn how to sleep again, giving myself “permission” to get an extra hour or so in after feeding the cats first thing in the morning (anytime between 6-7 am). Which also means I’ve got better at falling asleep again after being woken up, so more sleep for me!

I’ve worked out a nice morning walking route along the river that is similar to what I used to do on my bike, but it finishes in the city centre so if I need to do any shopping or errands I can get that done after the walk. Perfect! Not quite the Camino de Santiago, but it’s a start.  🙂

tied up in knots

26 Friday Jul 2019

Posted by in health & happiness, home

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It was a normal day. I was working on this and that, spent most of the day at home thinking I would go out in the evening for a walk. Made a healthy “fridge forage” lunch that had plenty of fresh veg, some chicken and noodles. Then I relaxed a bit late afternoon, and then… OMG.

Suddenly I was hit by serious sharp abdominal pain, though not the same as what I experienced last week. This was way more intense. Thinking I could maybe “walk it off” I headed out to buy some ink for my printer, at the new shopping mall over the river. Halfway across the bridge I thought – uh oh, this isn’t normal – but then the violent cramps subsided and so I kept on. Bought my stuff, headed home, almost vomited in a public bin on the side of the street, but somehow made it back. And then it got much worse.

I crawled into bed, scared and in PAIN… it was so bad that I was actually crying out. Like all my insides were tied up in knots, like I was being turned inside out. I was so afraid I would end up back in emergency. Finally I fell asleep and when I woke up again in the middle of the night I drank some water (kept it down) and things seemed okay from then on in. But you know… WTF?