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Category Archives: cancer

irony

02 Monday Dec 2019

Posted by azahar in cancer, hospitals

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cancer, hospitals, irony, tests

So you may recall that I had a CT scan on November 4th, after insisting on some follow up preventative testing when I was told “you’re fine now” last February and to just come back if I had any pain. Duh. In the end managed to get my oncologist to agree to an ultrasound, which happened in August. Well, the ultrasound results showed some dodgy stuff going on with my liver, and an MRI was recommended. THEN my mystery pain returned, so the oncologist set up another CT scan.

I got the test results three weeks ago, only because my GP prints them out for me once they are in the hospital database, otherwise I would still be totally in the dark. And since then I have been waiting for my next oncology appointment, because frankly the results are a bit worrying and I don’t know what they plan to do about what they found or suspect. There is a hospital number to call for setting up an appointment, which takes you directly to an answering machine where you leave your details. I did this twice and still haven’t heard back. Then it ocurred to me that maybe they didn’t understand my phone message because of my accent and so today I went to make an appointment in person with the Oncology secretary.

When I arrived there were about eight people already waiting in the hallway outside the secretary’s office, which seemed pretty normal, so I joined the queue. But the queue wasn’t moving at all. Then it transpired that the secretary wasn’t actually in the office. WTF? About half an hour later we were told that all the computers were down so they wouldn’t be able to make any appointments BUT they would take down our details and call us back. WTAF??

And so we waited until someone who wasn’t the oncology secretary (never did find out where she got to) wrote down our names and other details on a sheet of A4, saying someone would get in touch when appointments for our doctors opened up again. Say what? Well, apparently the doctors are all fully booked and so they aren’t making any new appointments until… oh, they didn’t actually know. Maybe end of December? Some time in January?

Meanwhile, ran into a friend of mine while I was in the hallway queue. He was on his way to an oncology appointment because DAMMIT he’s had a recurrence and now has a tumour in his lung. We hugged and kissed each other and I was left feeling so sad. Also frustrated because, even though I know Spain has a very good public health care system, it somehow feels like it’s less efficient than it was a few years ago. I mean, I am definitely a “squeaky wheel” kind of patient, but what about people who don’t push for extra testing or follow-up appointments in time to maybe save their lives?

And the irony? When I finally got into the Oncology secretary’s office I saw this photocopied message taped on the wall. Don’t worry bitches, I am ON it.  😉

sue style

20 Wednesday Nov 2019

Posted by azahar in cancer, friends

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cancer, friends

I was shocked and saddened to hear that Sue Style died this past weekend. We had “known” each other on social media for years before finally meeting in person when she and her husband Monty passed through Sevilla in 2017. This is a photo from our afternoon tapeo. We had swapped cancer stories by email a few years ago, but I had no idea that hers had returned. Such a lovely and generous person. I’m so sorry we won’t be able to meet again.

ct scan results

12 Tuesday Nov 2019

Posted by azahar in cancer, hope, hospitals, sevilla

≈ 8 Comments

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cancer, ct scan, health, hospitals, sevilla

Picked up my CT scan results today. I’m so glad my GP will print out a copy for me once the report has been uploaded onto the hospital database. Then I type it out in Spanish and put it through google translate (with medical terminology it’s pretty accurate). And then I read it. Because I know it will be weeks before I get another appointment with my oncologist and it’s good not to feel in the dark all that time.

Anyhow, remember last year after my November 2018 CT scan when my oncologist told me I was fine now, cancer free for ten years, so I didn’t need any more scans, but you know, I should come back if I’m ever in pain? And I thought, fuck that shit, by the time you are in pain with cancer you are practically dead (as I found out back in 2008).

So I convinced her to at least let me have an ultrasound, which happened late last summer. And guess what? They saw something on my liver that they felt warranted an MRI. Meanwhile, my mystery pain came back (again!), so then my oncologist agreed to another CT scan, instead of an MRI, which she said was a more “complete” test.

All I can say is… damn good thing I am still getting tested! The report from last week’s scan is a mixed bag of inconclusiveness, but there is concern about “this and that”, so it looks like more testing is on the horizon. Not going to go into details now since nothing has been confirmed, but they could not entirely rule out more cancer, along with a few other new “issues” which have kind of left me reeling. On the other hand, it may all be nothing but inflammation from previous operations and illnesses. Me? I’ve gone numb. And am keeping on with my daily walks. There’s nothing else I can do for the moment.

blood!

14 Wednesday Aug 2019

Posted by azahar in cancer, casa azahar, home, hope, hospitals, sevilla

≈ 9 Comments

Tags

cancer, health, hospitals, sevilla

WARNING: although this looks like a Jackson Pollock (it’s actually BLOOD!) the rest of this post might be a bit TMI for some of you. Nothing gross or anything, just, you know, perhaps somewhat more info than you may want to know about. So you have been warned. And it’s totally fine if you don’t want to carry on reading…

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jed

24 Monday Jun 2019

Posted by azahar in cancer, friends

≈ 4 Comments

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cancer, friends

Descansa en paz my Wonder Twin  ❤

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