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Tag Archives: cancer

the chemo port

12 Monday Jan 2015

Posted by azahar in cancer, hospitals, humour

≈ 2 Comments

Tags

cancer, hospitals, life

port (2)

This photo was taken in May 2009 showing off my brand new chemo port. I remember how happy I was that they fit me in for this procedure before I had to resume chemo. Memories of collapsed veins and painful arms and hands…

Today I went for my monthly port cleaning and, while nothing wrong with that, I’d hoped that by now they’d have taken the darn thing out already. When I joined the five year club in November it felt like onwards and upwards. But I’m still waiting to have this thing removed, and I also need to have a colonoscopy this month (the 23rd) before the oncologist decides on what my future monitoring will be. PET scans every year? Every 8 months? We shall see.

Anyhow, I got a taxi over to the hospital this morning (a luxury I allow myself as I really HATE going to the hospital, so at least I can go in style and hang the expense). I was running a bit late today, though I got there at 12.40 (port cleaning hour is between 12 and 1 o’clock) and suddenly there was Manolo standing in the doorway when I skidded to a stop, arms crossed, tapping one foot, giving me The Look. So I said “WHAT? I still have 20 minutes!!” and then Manolo broke into a huge smile and led me to The Chair.

The procedure only takes about five minutes, but sometimes the port doesn’t cooperate and then I worry about blood clots or the nurse pushing air into my veins (I do, seriously). My favourite nurses are Manolo and Macarena. The latter because she is totally no-nonsense and the former because he always makes me laugh. Plus they are skilled at doing this – trust me, when I get a newbie I am a nervous wreck. Anyhow, there was Manolo scolding me for coming at the last minute, and I told him he was going to miss me after they take the port out. “Who else is always going to remind you to take care of the air bubbles??” I asked him. At which point Manolo burst into song, apparently something from his native Córdoba about a difficult “niña” (who, me?) …. and then it was done.

Then another nurse poked her head around the corner and said “another port cleaning!”. And I said to Manolo – “HA! I was not the last one and I expect you to scold this other latecomer as much as you scolded me!” I even made sure. As I was walking out and the other woman was walking in, I turned to Manolo and gave him the hand slicing gesture, winked at the woman, and Manolo went into full Manolo mode saying “what do you mean showing up at this time? you always get here LATE!” and we were all laughing. So I ended up leaving and really hoping it was going to be my last port cleaning, but also knowing I was going to miss Manolo.

hope 2016

03 Saturday Jan 2015

Posted by azahar in cancer, change, chemo, hope

≈ 1 Comment

Tags

cancer, hope

hope_2016

Continuing the “tradition of hope” started back on January 3rd 2009 when I posted my first ever Photohunt entry. The theme that week was “hope” and I put up a photo of my daybook turned to January 3rd 2010 with the words “STILL HERE!” written on it. I had finished a second stint on chemo just a few months previously and hoping felt like a very bold thing to do. Since then I have posted a similar photo on this date and – as always – hope with all my heart that I’ll be here to turn the page and see this next year.

This year is especially meaningful because in October I joined the “5 Year Club” marking five cancer-free years. But I know better than to assume anything and I feel just as tentative writing this as ever. But hey, it’s good to have hope.

hugz

05 Wednesday Nov 2014

Posted by azahar in cancer, friends

≈ 3 Comments

Tags

cancer, friends, hope

hugz
I recently found out that a friend of mine has breast cancer. Yes, she is scared. And dealing with the situation as best she can, with the support of family and (some) friends. It’s brought me back to remembering how it was for me when I was first diagnosed. I had no idea how to feel, felt quite lost at sea. On a dark and stormy night. And now I’m okay. For now. And she isn’t. Yet. Treatment has yet to be determined – the goddam waiting is hell for her, and I know how that is. I also know that – for now – all I can do is be here for her, not be afraid of her fears, not feel any need to “make her feel better” and let her feel okay about sharing whatever she wants or needs to. Oh, and send virtual hugs. This is for you, A. xx

5 year celebration

29 Wednesday Oct 2014

Posted by azahar in cancer, change, friends, hope, tapas

≈ 2 Comments

Tags

5 year club, cancer, friends, health, hope

celebration (1)Celebrating 5 years of being cancer-free with Peter, Kyran & Claire.

celebration (2)First stop La Azotea…

celebration (3)Then we went to La Pepona…

It is still slowly sinking in. And in some ways it’s as much as an adjustment as when I did this in reverse. Except I hope this new feeling doesn’t ever go away – that feeling like it’s Christmas when I wake up in the morning.

the 5 year club

28 Tuesday Oct 2014

Posted by azahar in cancer, change, friends, health & happiness, hope, hospitals

≈ 9 Comments

Tags

cancer, friends, home, hope, hospitals, pet scan

pet tac

Today marked a very important milestone for me. I had my “5th anniversary” PET scan – which came back clear! – marking five cancer-free years (I finished my last chemo at the end of July 2009). I almost couldn’t believe it when Pilar texted me while I was out having coffee, saying that everything was okay. In fact, I burst into tears. This one is a game-changer. I won’t know exactly what they have in store for me now until I see the oncologist again next month, but today should be the last of the every-six-month PET scans (will switch to either once a year or possible every 10 months) and I will finally be able to get the chemo port out. That last one will be a relief and I won’t have to make my monthly visit to the hospital to get the thing cleaned out. So it’s all good.  I mean, I’m not “out of the woods” yet. The 5-year mark is kind of random and my case is more baffling than anything. Most stage-IV people don’t stay in remission for this long. But hey, I’ve made it this far and at least for now I am fine, so it really does feel like a fresh start.

As always I want to thank my amazing Nuclear Medicine team – Pilar and Isabel (Ricardo retired last year) – and also all of you for being there with me through all of this. You can all take the next year off.  😉

A side note: October 28th is the saint day of Santo Judas Tadeo (Jude the Apostle) patron saint of lost causes. Coincidence?

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