• about azahar (that’s me!)
  • my cancer story
  • azahar’s kitchen
  • azahar’s sevilla
  • sevilla tapas
  • personal trip planning

casa azahar

~ my life in sevilla

casa azahar

Tag Archives: hospitals

good news, bad news…

25 Thursday Jan 2018

Posted by azahar in cancer, health & happiness, hope, hospitals

≈ 20 Comments

Tags

cancer, health, hope, hospitals

officially radioactive!

I’ve been having routine PET scans since I was first diagnosed with stage 4 colon cancer (metastasis to liver) back in May 2008. At first they were every six months, but then once I became a member of the 5 Year Club they were reduced to once a year.  And every time I’ve been scared witless, fearing I’d hear the worst after my scan. I am very fortunate that my friend Isabel is the head of Nuclear Medicine at my hospital, so she always has a look at my scan while I’m there and gives me the results on the spot. She’ll call me into the PET area and say “all normal, nothing to worry about” and then send me on my way, not quite believing my good fortune.

But today after my scan Isabel called me into a private office and asked me to sit down.

And well, it’s kind of good news / bad news. The good news is that my liver is clean, no signs of anything nasty going on there. The bad (or potentially bad) news is that the “area of inflammation” that has been showing up on my PET scans since 2008 has increased dramatically. Over the years this area has been constantly shrinking, with each PET scan showing it a bit smaller and, as long as it kept shrinking, it was always considered a result of scar tissue. Today Isabel told me that it is back to the size it originally was back in 2008. And so now I will have to undergo more tests – CAT scan, ultrasound, colonoscopy – to (hopefully!) rule out cancer. In theory it could be an inflammatory infection, complications due to the adhesions, or any other number of non-cancer-related issues. Or it could be cancer. And so, Isabel has taken steps to get me an appointment with Oncology asap so they can start the extra testing.

I’m annoyed that they didn’t take me seriously at Emergency when I went there complaining about the abdominal pain back in November (exactly two months ago today). My GP also blew me off when I went to ask him about it afterwards, saying I just had gas and should take a pain killer. And even when I saw an oncologist at the beginning of January, she was totally dismissive about my complaints (you need to lose weight, I’m sure it’s just gas), and reluctantly booked my next PET scan.

The good thing is that now Isabel is setting the wheels in motion for me to get the appropriate extra testing done and, more importantly, to have me taken seriously by these other doctors. Meanwhile I am fluctuating between absolute terror and total denial. How’s your day going?

oncology visit

05 Friday Jan 2018

Posted by azahar in cancer, hospitals

≈ 4 Comments

Tags

cancer, health, hospitals

Ever since “Lost Saturday” I’ve been quite concerned about the abdominal pain I’ve been experiencing since the beginning of November. I thought for awhile I’d figured out the source of it, but then it shifted, and now it’s worse than ever… really, wtf?

Anyhow, I finally got to see an oncologist today to request my annual PET-TAC scan (it used to be every 6 months), and that was fine. Or as fine as things can go when you are talking to a doctor you’ve never seen in your life, and you are talking about your life… In this case the doctor put in the request, but then she said to me that this would probably be the last time I will need to have scans. Ummm… what? No more annual scans? Why not?

This is a photo I took back in 2009 to show the scars I’d been left with after the 3 slice & dice abdominal cancer ops (there was also a subsequent non-cancer related surgery in 2011, following the same scar lines). So that area of my ever-ageing body is pretty much a big mess. If there are reasons (adhesions?) that I have PAIN all the time now… why can’t anybody tell me this? It’s very frustrating. All I can do now is wait for the next PET-TAC.

self help

19 Tuesday Dec 2017

Posted by azahar in cancer, health & happiness, hospitals

≈ 6 Comments

Tags

cancer, doctors, health, hospitals, massage

So remember my recent “lost Saturday” spent at Emergency due to scary lower abdominal pain? The doctor decided that it was probably “something muscular” and not cancer-related, so I was sent home, still in pain and none the wiser. But during a subsequent email conversation with the amazing Kate (aka Sledpress), she also told me it sounded like a muscular problem that may (or may not) be related to the excrutiating shoulder and arm pain I’d also been experiencing. In fact, both of those started around the same time and just seemed to be getting worse. I didn’t mention the shoulder/arm pain to the emergency doc because, although it hurt like fuckity, it wasn’t in a “scary” location, and I didn’t think they were related.

Anyhoodle, time went on, the pain kept on, nothing was changing… until I went to Málaga! Since Kate had me convinced at this point that the abdominal pain was muscular I started looking for triggers, daily repetitive movements that might be contributing to my discomfort. Then, as if by a miracle, after two days in Málaga my belly pain was easily halved. What? I couldn’t believe it, and I also had no idea why. But it became clear after I got home and went to shower. You see, the new Casa Azahar has a lovely walk-in shower with beautiful tiles. I love it. But there is no bathtub. Meanwhile, at the Málaga apartment there is a bathtub/shower. Difference? Well, at a risk of TMI, I realised that having a bathtub provides a handy footrest when *ahem* trying to reach certain body parts. Just having a flat shower floor requires a different sort of twisting and bending and… BINGO. I found the source of the problem. Or at least so it would seem. I think it will take awhile for the pain to disappear completely, but it’s amazing how much better it got just after two days of NOT DOING THAT (repetitive stress movement). And as soon as I got home I bought myself a plastic shower stool, so I hope that will help with a full recovery.

Meanwhile, Christmas came early while I was away, and I received these two mysterious looking items from Kate. Luckily you can look these things up online and there are even videos to show you how to use them. Because honestly, would you have the slightest idea? And once again, after just two days of using that coat rack looking thingy up there (actually called the Theracane) my shoulder/arm pain has been much reduced. Like whaaat?? For almost two months it’s been frozen solid in PAIN and sleeping was almost impossible. Now I can feel it getting a bit better every day. Incredible.

Of course I need to keep the treatment up, and start doing more preventative self-massage stuff. For example, that little 4-way knobbly thing up there is perfect for when I’m sitting at my desk to release pressure build up in my lower back (well, along with regularly getting up and moving around, natch). It’s been two years since Kate sent me the Trigger Point Therapy Workbook, and I haven’t used it nearly enough. But that stops now.

So the lesson here girls and boys is that we really should be more proactive when it comes to our own health care. Because who knows our bodies better than we do? Both the emergency doctor, and later my GP, just prescribed some scary pain meds (possible side effects: anaphylactic shock!!), which I decided not to take. Because I thought the pain was there for a reason I still hadn’t understood, so I didn’t want to just numb it. I wanted to know why it was there.

Of course both doctors and medical treatments have their place. I wouldn’t be here today if not for the top surgeons who saved my life, and the others who made sure I got the best cancer treatment (almost) ten years ago. And many chronic illnesses are often best treated with drug therapy. But this time I am glad I didn’t go with the simple painkiller option.

Also, I’m not criticising doctors who take the “take two aspirin and call me in the morning” route, because they are so overworked – I’m told that GPs here are only allowed about 4 minutes per patient to stay on schedule, and hopefully they are good enough diagnosticians to point you to the right specialist if you need one. I also agreed with my Emergency doctor that she had done her job (no emergency here, let’s move on). Which then left it up to me to figure out what was going on. And thanks to Kate, and a quick trip to Málaga, it seems things are now getting better.

 

lost saturday

25 Saturday Nov 2017

Posted by azahar in casa azahar, cats, health & happiness, hospitals

≈ 13 Comments

Tags

casa azahar, cats, emergency, health, home, hospitals

Though I have to say I am happy it didn’t turn into a lost weekend (or worse!). I have been having some very uncomfortable abdominal pain (lower left side) for about 10 days, but as I tend to get a lot of discomfort down there due to the hernia, and the adhesions from multiple operations, I mostly just live with it. But the past couple of days it was getting much more painful, even when taking a deep breath, so I decided to head over to Emergency.

Of course because PET scan time is coming up (the last one was in December 2016) part of me was fearing The Worst. Not to mention that I was remembering another time I’d gone to Emergency with serious abdominal pain and it ended up with me having an emergency op to remove an infected ovary. So before I could leave the house I had to make a few preparations (mostly cat related) in case I didn’t come home that evening. But I was wishing with all my heart that my Saturday evening would be spent at home, Netflixing with all the cats on my lap.

Peter kindly came with me. We met near the taxi stand and on the way I reminded him about the cat feeding schedule, where to find all my passwords, etc, in case I ended up having to stay in hospital (or worse!). Even how to access my bank account in case of, you know, The Worst. And all the while I kept trying to stay calm.

Once at the hospital I got poked and prodded, and the doctor said she couldn’t find any evidence of an obstruction. I asked if it might be hernia related and she asked where the hernia was. I have to admit I lost a bit of confidence when I had to point out the balloon of flesh protruding from my belly button. But just to rule out anything serious she ran blood & urine tests and I got an abdominal x-ray taken. THEN we had to wait three long and stressful hours for the results to come back. They were all normal.

Of course this was a relief, but the doctor still had no idea what was causing the pain and said I should get in touch with either my GP or Oncologist. I asked about having a CT scan done and she said they wouldn’t do that in Emergency unless they considered it an Emergency Situation, and she seemed to think she had ruled out any serious cause for my mystery pain. I dunno, it felt a bit like she was passing the buck. A couple of years ago a similar instance occurred and they at least did a second x-ray with a contrast agent for comparison. So I guess I’ll call both my GP and the Oncology department on Monday and see what they say about all this.

Anyhow, although I wasn’t left entirely at ease at the end of my lost day at the hospital, I was happy that my earlier wish had come true and I got to spend Saturday evening at home covered in cats.

the window

22 Wednesday Feb 2017

Posted by azahar in cancer, hospitals, sevilla

≈ Leave a comment

Tags

cancer, health, home, hospitals

windowIt’s not easy to find beauty in an oncology waiting room, but I have always loved these ripply floor to ceiling windows. This visit wasn’t as scary as other times, since I already knew the results of the last PET scan, so it was mostly to check new blood work and arrange the next scan.

I have such mixed feelings whenever I go to the hospital. Part of me hates it, another part feels so grateful because they saved my life, and yet another part just hopes I will never ever need to sit in the other section of the oncology waiting room, waiting for treatment. This time I got to walk home and enjoy every breath.

← Older posts
Newer posts →

patreon (1)

OR

comments

Unknown's avatarmini co2 detector |… on baby hepa
Unknown's avatarmini co2 detector |… on hepa filter
Unknown's avatarmini co2 detector |… on lockdown
Unknown's avatarmini co2 detector |… on covid day 6
Unknown's avatarmini co2 detector |… on new kipling
sledpress's avatarsledpress on lego semana santa
Unknown's avatarsunday song –… on kalé
Unknown's avatarsilence is… we… on tools of the trade
earnestlydebra's avatarearnestlydebra on end of an era
Unknown's avatarkalé | casa azahar on end of an era

meta

  • Create account
  • Log in
  • Entries feed
  • Comments feed
  • WordPress.com

visitations

  • 972,480 peeks

categories

archives

Enter your email address to subscribe to casa az and get email notices of new posts.

Join 2,235 other subscribers

azahar on Instagram

No Instagram images were found.

Blog at WordPress.com.

  • Subscribe Subscribed
    • casa azahar
    • Join 1,968 other subscribers
    • Already have a WordPress.com account? Log in now.
    • casa azahar
    • Subscribe Subscribed
    • Sign up
    • Log in
    • Report this content
    • View site in Reader
    • Manage subscriptions
    • Collapse this bar
 

Loading Comments...