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Category Archives: cancer

novembery

15 Monday Nov 2010

Posted by azahar in cancer, change, sevilla, shoes, spain, weather

≈ 4 Comments

Tags

november, seville

Unlike when I posted this, it is now mid-month and definitely getting Novembery out there. Think it’s finally time to put away (well, throw away) the sandals and get a pair of winter shoes. Have actually worn my old red shoes a couple of times this month already, but as you can see, RAIN is coming, so I’ll need a some non-leaky ones soon. Have also been tempted a couple of times to switch on the space heaters in the living room but have so far opted for an extra sweater.

I’m kind of looking forward to winter now. I’ve noticed that they’ve almost finished putting up the Christmas lights around town, and will probably switch those on at the end of the month. Used to be they didn’t turn them on until December 8th – día de la Inmaculada – but last year they bumped it up a couple of weeks.

For my part, I’ve finally got my clothes sorted and have put all the summery ones away. Have noticed I could use some warm pj’s and a new sweater or two, but otherwise should have enough winter wear to get me through until it’s time to look for new sandals in February. As always, when I think of the future, it’s with a bit of apprehension (will I be on chemo in February? Will I be okay?) and as I get closer to the next PET scan I’m sure the “scanxiety” will reappear. But for now just looking forward to Christmas and my birthday and hope to make lots of happy memories as I go…

pokies are no jokies

04 Thursday Nov 2010

Posted by azahar in cancer, hospitals

≈ 17 Comments

Tags

cancer, chemo port, emla

As most of you probably know, ever since I got the chemo port put in and then stopped treatment (end of July 2009) I’ve had to go to the hospital once a month to get my chemo port flushed out… otherwise it could get blocked and, well, kill me. And since I am still considered high risk for recurrence I’ll probably have the port in for the next few years. But even though it’s a bit of a nuisance to go and get this done every month, at least that’s all it is now. At first, after my last chemo, every trip to the hospital was fraught with fear and anxiety and I always needed a “hospital buddy” to come with me. But then one day there wasn’t anybody and I needed to get the port flushed out, so I bravely got into a taxi and went by myself (twittering like mad all the way – and bless everyone who tweeted back at me). But I did it, got there and back again without falling apart. So from then on it got easier for me to go on my own for the chemo port thing (though going in a taxi is still necessary to avoid panic attacks).

The actual cleaning itself isn’t too bad, and I’ve learned that if I get there after 7pm I’m pretty much in and out in about 20 minutes. Sure, it’s still hard to walk into the chemo room and hear the beeping machines and see all the people getting their infusions – my heart really goes out to the ones who don’t have chemo ports and are getting it in the hand or the arm (ouch!). But in general I’m okay about going to do this on my own now, though it’s a bit hit and miss with the nurses. Some are quick and efficient, others seem more than a bit clueless (they scare me!) and others look visibly annoyed when I ask them to remove the air bubbles before sending a whack of saline back into my vein.

About three months ago I had a male nurse do the procedure and when I saw him painstakingly lay out all the stuff needed I thought – “uh oh, a newb!” – and wondered if he knew what he was doing, especially when he seemed to be missing one syringe full of saline. So after he finished I asked why he used one syringe less, which got him flustered so he went off to check, then came back and said I was right, was all apologetic, and said he’d do it again. Well – ouch. But better to have it done right… right?

Then last Tuesday evening I decided to go get the port flushing over with (had originally planned to do it today), got in a taxi and was actually pleasantly surprised to see the same male nurse. And he remembered me, and told me how he’d just taken a booster course in port cleaning and that I had nothing to worry about. Ah, he made me smile as I watched him carefully lay everything out in his meticulous way. He also made me laugh when he said he hoped there wasn’t any sad reason I was dressed all in black – I wiggled my red earrings and toes at him and said I had happy accent colours. And when I said “hey, watch it with the bubbles”, he very seriously explained how he never uses the last bit in the syringe as that’s where the air is trapped. And so I decided I loved this guy and always wanted him to be there when I went to get my port flushed out, this guy called … Wenceslao?? No shit, I glanced at his name tag and that’s what it said. So I said… “You’re name is… Wenceslao???” And he was all “Well, I don’t see what’s weird about that, you guys have that song about that king…” and I fell in love with him even more. My huge bald bear of a young male nurse wearing bright yellow crocs and called Wenceslao, who takes such excellent care to do the port flushing just so.

After it was done he asked if I was in a hurry because he wanted to show me something on the computer that he’d learned about in the last course, in case I wanted to try it for next time … and it was this Emla cream. It’s a topical anaesthetic and Wenceslao told me if I got some I could put it one hour before coming and then it wouldn’t hurt when I got, um, poked. Because that’s what the image on the computer screen said (same one as here)… pokies are no jokies. And then he leaned over and muttered under his breath… “what’s a pokie?” So I poked him in the arm with my index finger and said I’d ask my GP (Agustín) about it. But another nurse had been watching us and said there was tons of Emla in the nurse’s station, so Welceslao got me a tube and some bandages (“you don’t want to stain your blouse”) and got me all set up for the next time. I didn’t have the heart to tell him the pokies didn’t actually bother me much. It was too sweet of him to go through all that trouble, so I will indeed use the cream next time and hope I catch his shift. I should have asked for his mobile number so I could call ahead and check. Next time…

sometimes…

21 Thursday Oct 2010

Posted by azahar in cancer, death & dying, health & happiness, hope, life stuff

≈ 20 Comments

Tags

cancer, life stuff

…entire days go by without me thinking about having a terminal illness.

Yesterday wasn’t one of them.

precious

14 Tuesday Sep 2010

Posted by azahar in cancer, change, family, life stuff

≈ 8 Comments

Tags

precious

Watched the film Precious this past weekend and I was all prepared with kleenex as I’d heard it was quite the tear-jerker … but what I hadn’t been prepared for was how it would tear my guts apart. I mean, no, I was never quite that obese as a child and my family life wasn’t quite as violent, and instead of being told I was stupid I was told I was selfish and BAD (knowing I was far from stupid was the only thing that kept me sane), but there were enough similarities there to drag me through a whole hellish trip down memory lane. And although most of those memories are emotional ones – I probably only have about 10% actual recall – they remain very strong memories indeed.

Some differences: I didn’t end up pregnant and I left home when I was 15, though I did end up going to an alternative highschool when it became clear that I wasn’t fitting into The System. That was my choice and I’m really glad I did that or I probably wouldn’t have finished school.

I’d rather not talk about the similarities, other than this one: in the film the girl called Precious is always drifting into fantasies when awful things happen to her and I swear I spent almost my entire childhood “somewhere else” that felt safer and where I could imagine I was somebody special and loved. And there is a scene in the film when Precious is asked to talk about her life in class (at the alternative school) and when she is finally able to do so and is asked how that made her feel she says “Here. It made me feel Here”. I could hear that capital H and, well, I crumpled up at that point because I knew exactly what she meant and also thought how lucky she was to have got there so much sooner in her life than I did. Because although the fantasies became less frequent – and less “out there” – I found other ways of not being here, which I know held me back and kept me from doing more with my life. In fact, it probably wasn’t until I got cancer that I started to really pay attention and stay in the moment, mostly because most everything else ceased to matter. What a way to grow up.

But I am Here now … well, most of the time anyway.
And I do think I’d like to stay awhile.

on the cutting of slack

02 Thursday Sep 2010

Posted by azahar in cancer, change, friends, health & happiness, life stuff

≈ 25 Comments

Tags

cutting slack, excuses

Something MAJOR happened to me last June 28th when I was told my latest PET scan came back clear – I stopped feeling so goddamn scared, worried and upset all the time. It just stopped. And I decided that no matter what happened when I had the next PET in January, I was going to take a “cancer holiday” and not only truly enjoy my first summer in three years not being on chemo, but also work on getting ahead with my life and not fret about “what ifs”. Because it’s often felt like a very long and lonely limbo since May 2008. And I think that in general most people got that, even if they couldn’t really know how it felt, and I think they cut me some slack if I was ever a bit over-emotional or said something stupid … I do think most of my friends knew it was the Fear talking. But some didn’t, or chose not to see the scary place I was in, and that the source of any emotional or verbal outbursts stemmed from … well, basically the daily stress of having stage IV cancer and all that entails. Those people are no longer in my life, and I do not miss them, though sometimes the cruelty of their refusal to cut me any slack makes me wonder what the hell that is all about…
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