01 Thursday Dec 2016
Gotta admit I have a love-hate-love relationship with this machine. But today I totally LOVE it. Another “all clear” PET scan today. So fucking relieved, so very very happy. Still can’t believe it. Spent the afternoon celebrating, now off to spend the evening at a work event. There will be jamón! xx
01 Saturday Oct 2016
Posted in health & happiness, hospitals, london
So while on holiday back in August I was on my usual number 15 London bus heading into town and had secured the front seat on the upper deck (yay!). Getting close to my stop the bus was stopped at a red light, so I thought this was a good time to make my way downstairs. Then, as soon as I was at the top of the stairs the bus took off again and down I went! My right hand automatically shot out to break my fall and smashed against the railing. In the end I only stumbled down a couple of stairs, but the damage was done. Hand immediately started hurting like a sumbitch.
Next day I met my friend Thane for lunch. She took one look at my hand and told me to take my ring off immediately before the swelling got so bad I’d have to get it sawed off. Which turned out to be very good advice. And well, since then, it really hasn’t been getting any better. So I finally went to have it x-rayed and it seems like nothing is broken. But the space between my pinky and ring finger is still very tender and swollen (almost two months later), which can’t be right. Someone suggested I get an MRI done, since x-rays don’t often show the whole picture. My doctor says I should keep icing it and STOP USING IT (or at least as much as possible). Really not sure what to do at this point.
11 Monday Apr 2016
Posted in cancer, health & happiness, hospitals
THIS is what I ended up drinking instead of Tío Pepe en Rama today! But I’m getting ahead of myself. What happened was that after a lazy Sunday I settled down with Morcilla to watch some Netflix and have a late lunch (roasted cauliflower and parmesan noodles) and about an hour later I started feeling sharp pains in my upper abdomen. It got so bad that I had to go lie down, and after awhile the vomiting started. This lasted all night and by morning I was in so much pain I could barely stand up. Yep, it was time to go to Emergency.
When I got there I had my belly prodded and was immediately x-rayed, had blood taken, and was given an intravenous blast of painkiller (phew!). And about an hour or so later I was told the dreaded news that I would be staying in for Observation. They suspected an obstruction and, given my history, didn’t want to take any chances. I had been hoping it was my hernia acting up, but the doctor said the hernia wasn’t “presenting as a problem”. She said it was more likely the adhesions, but that they wanted to rule out, you know, CANCER. So I was wheeled over to Observation, where I put on my gown and got into bed. Luckily by this time the vomiting had stopped otherwise I would have had to have the super-dreaded NASOGASTRIC tube stuck down me in order to ingest the liquid you see above (a contrast agent for the second x-ray, for comparison with the first). Imagine licorice-flavoured snot…
Long story short, the second x-ray didn’t show anything alarming and by this time I had had a BM (more proof there wasn’t a serious obstruction anywhere) and was told that if I was fine (no vomiting) after having a snack, then I could go home. I also got to see the surgeon who had performed all my ops. But I was already counting the minutes – being in the Observation is not an experience I would wish on anybody – so when they suggested I also stay for dinner just to be sure I PROMISED I would come back immediately if there was the slightest return of the previous symptoms. And so they let me go.
What a Monday. I was supposed to have gone to the presentation of this year’s Tío Pepe en Rama, which has become something of a tradition. But to be honest, I was just so relieved that nothing was seriously wrong, and so happy to be back home with the cats, that missing the event didn’t seem so important. I’m supposed to stick to a bland diet for awhile as they are still not sure what caused the temporary obstruction. But as you can see below, adhesions are quite nasty things to have, and can cause all kinds of painful (and sometimes deadly) mayhem. Since I have had four major abdominal surgeries you can imagine the mess that’s going on in there. There is a chance of having some of the adhesions removed, but as this would involve another surgery, it will probably end up with more adhesions later on anyhow. Will have to seek some medical advice about this.
12 Thursday Nov 2015
Posted in cancer, health & happiness, hospitals
Today I had to go see my new oncologist. Which wasn’t nerve-wracking as I had already got the ALL CLEAR good news results just after my most recent PET scan a couple of weeks ago. Some of you may recall that a few years ago my then oncologist totally misread my results and told me I only had a year to live. The asshat hadn’t even seen the biopsy report, she just handed out a death sentence. After that I started seeing the sub-director of Oncology, and that was great. I could talk to her, she got things done, and all tests went smoothly. Until she got cancer!
And so last year I was told that after this year’s PET scan I would be transferred back to my original oncology group. Well, okay. Except I walked into the office this afternoon and I swear there were two 14-year-olds sitting there. And their idea was that I should have a CT scan in 6 months and, if that went well, I would continue with annual CT scans. WTF? I told them that last year (after reaching the five year cancer free point) I’d been told I would be having PET-CT scans anually, and they said “BY WHO?”… honestly, they couldn’t have been more unprofessional (caught one of them giggling at me as I was getting up to leave). Anyhow, we have left it that they would get in touch with Nuclear Medicine and sort out the next step of my future scans. Meanwhile, I’d rather be getting the PET-CT scans, wouldn’t you?
21 Wednesday Oct 2015
Posted in cancer, health & happiness, home, hope, hospitals
I came across this the other day whilst thinking about scanxiety, and at first I thought, hey yeah, that’s cool. But then I thought, hey wait a minute.
I agree with the bit that talks about the things that cause our anxiety have already happened (so saying not to worry about things that will never happen obviously does not work here). And I agree with the part that says it’s about remembering. Because it did happen to me. Again and then again. So you know, why wouldn’t it happen yet again?
Which brings me to the part I disagree with “it’s not so much about worrying.” Sorry, for me it’s TOTALLY about worrying. And fretting, and second-guessing, and hoping, and regretting, and even panicking. Hey, it happened before, it can happen again. Why is that so hard to understand? And all those well meaning people who say “Don’t worry, you’ll be fine”… I kind of wish they wouldn’t say that. I know it’s not meant as such but it feels a bit like being given the brush off. That I am worrying about nothing. Really? If your cancer came back twice would you honestly and truly believe it would never come back again? That there is nothing to worry about? Think again.
So what’s the best thing to say to someone terrified about the possible outcome of yet another PET scan? Well, how about whatever is real for you? That you have no idea what I’m going through but you are hoping for the best. That you will get on the next plane if it all goes tits up. That you’ve been through this yourself and it’s totally shit and you’ll be waiting for me on the other side of the results. And even that you care a lot but simply don’t know what to say – that’s all totally okay and also totally understandable.
But please don’t tell me not to worry. Or that of course I will be okay. Though in fact, it turns out I am okay this time, at least for now. Yesterday’s PET scan was ALL CLEAR. And I’m still processing this. It will take a few days before I allow myself to feel all that happy relief. Or rather, I will dole it out bit by bit… once you have almost died you learn to savour things, so this happy joy of once again dodging a cancer bullet should keep me going until at least Christmas. After that, it will be life as usual again. Or at least as usual as it ever is for cancer survivors. Hey, thanks for listening. xx
casa azahar 